After 2 years, I have regretfully quit Tecfidera

[JerryD]

So you are in the 'special' lucky 8% ! I am not surprised ! That would be my 'luck', too ! I hope you and your doctor find something, soon ! Good luck

[MSW1963]

Marco, minimizing the reality of intense burning sensation and glowing red skin, both extremely uncomfortable. In addition to increased body heat contributing to weakness. the joy. So sorry that aspirin didn't help you manage that better.

I continue having problems with vision, followed by impaired cognition. May start a thread. Thankfully, burning/cold arm pains have eased.

Just read about your BP spike on Gilenya. Keep us posted about what's next on your DMT list. It can be extremely demoralizing, so do take extra special care, be kind to yourself, and do what's necessary to keep your spirits up.

I was +JCV when starting Tysabri, like many others several years ago. It's possible that the current trend is leaning toward refusing/avoiding TY in those with an existing +JCV status, which may be for the best.

Take good care.

[hope32]

I'm so sorry you had to quit Tec. I'm on the verge of possibly quitting it after 2 years as well, and contemplating switching to Gilenya. I meet with my MS specialist tomorrow to discuss this and decide for sure. Sorry Gilenya didn't work for you either and that you and your dr are not on the same page. How frustrating. I hope you're able to find a new treatment soon that will work well for you.

[lindaincolorado]

Marco, can you change neurologists ? I believe we have the right to be a part of making health choices, which include our treatments. I have fired a couple neuros. I now have plans to fire my pcp.
I wish you my best!
Linda

[AlaskaAnn]

I also just quit tec after two years

Became allergic to Tecfidera after taking just 2 years now. I will be trying Aubagio next it looks like.

[Marco]

Marco, can you change neurologists ? I believe we have the right to be a part of making health choices, which include our treatments. I have fired a couple neuros. I now have plans to fire my pcp.
I wish you my best!
Linda

Linda,
I am currently using a neurologist from the Department of Veterans Affairs (VA). I've had interesting conversations with the VA recently and believe things are about to dramatically change for me. I'll have to post about the details once they are finalized, but currently excited for me and other veterans with MS.

[Marco]

Became allergic to Tecfidera after taking just 2 years now. I will be trying Aubagio next it looks like.

Arrrrrghhh! My MS was not stable until I got on Tecfidera. It's frustrating to begin depending on a medication and then start having problems. I am so sorry Ann! I hope your next medication is your last medication until a cure exists!

[lindaincolorado]

Linda,
I am currently using a neurologist from the Department of Veterans Affairs (VA). I've had interesting conversations with the VA recently and believe things are about to dramatically change for me. I'll have to post about the details once they are finalized, but currently excited for me and other veterans with MS.

Marco, I am excited for you and other veterans with ms, too! I am sooo glad you found someone to have interesting conversations with. The VA needs to get it's act together to help/be there for vets. My ex who has kidney problems because of Vietnam has been dealing with/fighting the VA for years.

I am waiting for good news from you..

[roadz]

Became allergic to Tecfidera after taking just 2 years now. I will be trying Aubagio next it looks like.

What allergic reactions did you experience with Tecfidera?

I was on Tysabri for 33 doses even though I am JC+. I never felt better even though I am PPMS. But my odds for PML was "guesstimated" at 1/300, so I decided to quit TY in 2011. Haven't taken any DMD since. But I have been progressing more and my nuero suggested we try some type of DMD. I narrowed my choices to Tec and Gilenya. Have 2 friends on Tec with no trouble on Tec and been doing research on all meds. I will try Tec and see how it works out. I can't see myself taking Lemtrada and having to get blood/urine tests for 48 months and beyond.
I'll keep lurking and read all the great info that is posted. I'll also post my experience on Tec after I get started. Stay strong, everyone.