I see a number of threads here about Tecfidera and stomach issues! My neurologist was very quick to put my on Tecfidera after being on Copaxone for six months and suffering severe site reactions on that drug. So, in Nov of last year I began Tecfidera. About 10 days in on the lower dose I began to have severe gastro issues. non stop explosive diarrhea, nausea, cramping,and loss of appetite. Anything that went in my mouth exited almost immediately. I finally stopped taking it because I was basically unable to leave the house. My 'MS team' insisted I must have the stomach flu. Last week I gave it another shot...same results except the side effects began after the very first dose. I was told this was a 'very unusual' side effect...like I was making it up. After 6 days this go around I have stopped taking it again. I just can't live like this. I've been made to feel like I'm wimping out by quitting....but really, I just can't 'stomach' it, if you'll pardon the pun.
I'm beginning to wonder if I can tolerate any DMT. At least I can see from the boards here I'm not alone with the stomach issues on Tecfidera, but has anyone else experienced these side effect early on? Kind of at my wits end with the lack of support from my medical professionals. I feel like they just aren't listening or believing me. I feel as though I need to be doing something, as my last MRI shows new lesions, but I'm afraid Tecfidera might just kill me!
I'm beginning to wonder if I can tolerate any DMT. At least I can see from the boards here I'm not alone with the stomach issues on Tecfidera, but has anyone else experienced these side effect early on? Kind of at my wits end with the lack of support from my medical professionals. I feel like they just aren't listening or believing me. I feel as though I need to be doing something, as my last MRI shows new lesions, but I'm afraid Tecfidera might just kill me!
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