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How many Relapses since on Tek??

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    How many Relapses since on Tek??

    Been on Tek 13 months and
    I have had 2 relapses. Right now am
    in the middle of the worst one ever and solu-medrol
    has not helped at all.

    #2
    I started Tec last August and I'm in the middle of a flare now. I'm still happy with the med though and would prefer to stay on it rather than going on an injectible.

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      #3
      I think I am a non-responder as well. At least two bouts of optic neuritis and I developed l'hermittes in the last year. *sigh*

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        #4
        One so far.. maybe

        I've only been on Tec 3 weeks so I'm not sure it should count but yesterday I woke up with seriously altered sensation on the bottom of my right foot. Feels like my socks are all bunched up in the bottom of my shoes. So far it's now spread to both feet and up my legs some. My 1st symptom in '04 was similar. It's probably the same lesion just getting a little bigger. Hopefully this episode will stop where it is and go away quickly. I was feeling so good just two days ago.. and now my walking is going back to ***

        Anyway, I doubt it has anything to do with the Tec. I haven't been on it long enough. It's just been an active MS year for me.
        Dx - Jan 2005
        1st Symptoms - Dec 2004
        Currently treatment - Tefidera (6/14) & LDN (4/09)
        Past treatments: Copaxone, Rebif, Avonex, Solumedrol IV, Prednisone

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          #5
          8 mos on

          And getting IV steroids now for relapse.
          Not sure if on on long enough to say it's not working.
          Tl-Tr3
          DX'07 MS- on Tysabri-

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            #6
            14 Months and 0 relapses

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              #7
              I have been on Tec since June 2013. No relapses so far.
              Optic neuritis 1999.
              RRMS diagnosed 2007.
              Copaxone 2007 - 2013.
              Tecfidera June 2013 - present.

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                #8
                Originally posted by shalimar View Post
                Been on Tek 13 months and
                I have had 2 relapses. Right now am
                in the middle of the worst one ever and solu-medrol
                has not helped at all.
                I've been on tec since June 2013 and so far no flares.

                The only new symptoms I've experienced include vertigo for a few days and double vision that lasted less than 5 minutes. Both of these episodes happened this past May and resolved quickly.

                Time will tell if these are precursors to a flare (knock on wood they're not)

                Hope your relapse doesn't last long and diminishes quickly.

                Good luck,
                Bree

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                  #9
                  Originally posted by BuckeyeJim View Post
                  14 Months and 0 relapses
                  See you're a fellow Buckeye. Do you mind me asking what health care system your MS doc is under? (i.e. University Hospitals, Cleveland Clinic, Kaiser, Metro etc. or perhaps OSU?)

                  Thank you,
                  Bree

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                    #10
                    12 months on, 0 relapses
                    God Bless Us All

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                      #11
                      8 months, zero relapses as opposed to Copaxone for 1 year with about 3 relapses.

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                        #12
                        None

                        9+ months - Zero Replapes...and lingering symptoms from prior replapses fully resolved.

                        MRI last week - All's quiet. No enhancing lesions, no new lesions.

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                          #13
                          Taking for 6 months 0 relapses

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                            #14
                            2 relapses in one year, waiting to be seen by the doc to get iv roids since the oral ones aren't working this time.

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