I have really been toughing this drug out. I desperately wanted it to work because it was doing wonders for my yucky psoriasis.
This weekend I once again had a bout with unbearable random itching. I scratched myself bloody to the point where I had to wear a sweater in July over my tank dress. I only noticed the damage when I took one last look in the mirror right before leaving for a function. My claw marks would have freaked people out (and the fact that my dress was red just accentuated it!
)!
Today I woke up with my left eye swollen shut and hives on my forehead and scalp...also on the left side of my body. The Tecfidera directions say if you get hives, STOP taking it.
When I first started my full dose of Tec., I got very sick to the point if seeing my primary (who I probably haven't seen in ten years) with a massive cold/allergy thing. I was coughing was all night! Then there was acid reflux, nausea, and misc. GI stuff. I learned that by eating like a pig, I could control many of these S/Es, and then came...the hair loss! I am leaving behind more hair than the 2 cats, the dog and my DD combined!
I have a doctor's appt. soon. I really should take a picture of my face and show it to my neuro. as "evidence" that I am not being a whiner (but I am much too vain-that one picture would get all over this computer and FB somehow!). I look like Rocky Balboa when he was sitting in the corner of the ring and told his manager to lance his swollen eye socket!
I am really bummed about this...I had high hopes for this drug from way back when we were calling it BG-12! Thanks for listening y'all!
This weekend I once again had a bout with unbearable random itching. I scratched myself bloody to the point where I had to wear a sweater in July over my tank dress. I only noticed the damage when I took one last look in the mirror right before leaving for a function. My claw marks would have freaked people out (and the fact that my dress was red just accentuated it!
)!Today I woke up with my left eye swollen shut and hives on my forehead and scalp...also on the left side of my body. The Tecfidera directions say if you get hives, STOP taking it.
When I first started my full dose of Tec., I got very sick to the point if seeing my primary (who I probably haven't seen in ten years) with a massive cold/allergy thing. I was coughing was all night! Then there was acid reflux, nausea, and misc. GI stuff. I learned that by eating like a pig, I could control many of these S/Es, and then came...the hair loss! I am leaving behind more hair than the 2 cats, the dog and my DD combined!
I have a doctor's appt. soon. I really should take a picture of my face and show it to my neuro. as "evidence" that I am not being a whiner (but I am much too vain-that one picture would get all over this computer and FB somehow!). I look like Rocky Balboa when he was sitting in the corner of the ring and told his manager to lance his swollen eye socket!
I am really bummed about this...I had high hopes for this drug from way back when we were calling it BG-12! Thanks for listening y'all!
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