Platelets from Tecfidera

[grammy2many]

I just had my 4 month follow up with MS Specialist. Blood test results showed kidneys and liver are just fine. However, he said my platelet count has been affected. He wants me to go back to 240 1x/day and get labs done in two weeks.

I was so shocked because I have had NO side effects from Tec and I was feeling really optimistic. The nurse said it was slightly high in October and higher still now, but not dangerous. I just realized I'm not clear on whether I' high or low or if the problem is with white or red blood cells.

Anyone else had this side effect.with Tec, and what was the eventual outcome?

[Jnscott9]

Blood tests

I've been on Tecfidera since last July with the usual side effects....stomach discomfort (which has gotten waaay better!), flushing (which is now only for 10-20 minutes instead of over 2 hours long)....itching which does go away soon after it starts. Other than that, I'm doing great. I go to Neuro in March for a follow up and if I can remember, I will post what my White Blood Cell count is then.

[PositiveMS]

I will report too

I've been on Tecfidera for just over 2 months. No side effects besides occasional flushing. I am getting blood work done at the 3 month mark as I'm part of a study with Biogen. I will let you know what they report.

[grammy2many]

Platelet concern

Thanks to both of you for your supportive responses. I have to have another blood test run next week to see what the results are after cutting my dose in half. It's so odd because I feel fine without any side effects. I'll let you know how it comes out. Thanks again -

[PositiveMS]

Well they took a blood sample about a week ago, and I haven't heard anything alarming, lol. They are super quick with blood work results at my clinic, so if there was a problem, I would know already. Not sure if they will share any numbers with me.