Tec was nasty the whole time
I understand you are looking for current users, but I recently ended a trial of the medication lasting for 81 days. And I while I believe you would like a thread with just positive experiences, there is a subset out there who go off this medication and have NO positives to report.
Within the first hour of the first 120-mg dose I heard my abdomen squish repeatedly. I do not recall if I ate something minimal as I was heading off to bed or not. I remember lying on my side many nights just so I could pass any gas while sleeping, and often farted when I got out of bed.
Nausea, nausea, nausea and the worst constipation in my life. MiraLAX was not enough had to add 3-4 ounces of prune juice a day just to go. Went through tons of Phenergan just to keep the nausea under control. I experimented at least twice moving to 240 mg twice a day, and the last trial of twice a day, which was about 6 weeks in, I came very close to vomiting upon awakening, and took only Phenergan and sip of water and as my salivary glands kept squirting in my mouth, and I kept swallowing, sitting close to the toilet until the anti-nausea medication kicked in. Most of the trial, I took 240 mg once a day in the morning with food.
I had four episode of flushing and only recall being really ill-feeling with the first episode, needing to lie down for at least 30 minutes.
I do not think there is anything magic about making it to Day 60 as I felt just as terrible on Day 48 as Day 81. I ended up doing 81 days only because I had to cancel an appointment due to bad weather. My neuro said genetics plays a role in who does well on a medication or not and right now there is no way to screen a person in or out based on genetics. I was quite surprised when he said I could go back on Avonex. I said before returning, I wanted to try one more of the new orals and selected Aubagio, which is quickly presenting, once again, symptoms not described anywhere drug package insert. I cannot help but wonder if the drug companies lie on those inserts because as a white with mostly English and French ancestry, I cannot believe I stand out genetically speaking, and end up with side effects not described on the insert.
If anyone is curious, the drug-free interval before trying something else is 2-3 weeks, which corresponds to when insurance approves and sends the next medication. He said he wanted to give my white chance to rebound before suppressing them again by a drug with a different mechanism of action.
I understand you are looking for current users, but I recently ended a trial of the medication lasting for 81 days. And I while I believe you would like a thread with just positive experiences, there is a subset out there who go off this medication and have NO positives to report.
Within the first hour of the first 120-mg dose I heard my abdomen squish repeatedly. I do not recall if I ate something minimal as I was heading off to bed or not. I remember lying on my side many nights just so I could pass any gas while sleeping, and often farted when I got out of bed.
Nausea, nausea, nausea and the worst constipation in my life. MiraLAX was not enough had to add 3-4 ounces of prune juice a day just to go. Went through tons of Phenergan just to keep the nausea under control. I experimented at least twice moving to 240 mg twice a day, and the last trial of twice a day, which was about 6 weeks in, I came very close to vomiting upon awakening, and took only Phenergan and sip of water and as my salivary glands kept squirting in my mouth, and I kept swallowing, sitting close to the toilet until the anti-nausea medication kicked in. Most of the trial, I took 240 mg once a day in the morning with food.
I had four episode of flushing and only recall being really ill-feeling with the first episode, needing to lie down for at least 30 minutes.
I do not think there is anything magic about making it to Day 60 as I felt just as terrible on Day 48 as Day 81. I ended up doing 81 days only because I had to cancel an appointment due to bad weather. My neuro said genetics plays a role in who does well on a medication or not and right now there is no way to screen a person in or out based on genetics. I was quite surprised when he said I could go back on Avonex. I said before returning, I wanted to try one more of the new orals and selected Aubagio, which is quickly presenting, once again, symptoms not described anywhere drug package insert. I cannot help but wonder if the drug companies lie on those inserts because as a white with mostly English and French ancestry, I cannot believe I stand out genetically speaking, and end up with side effects not described on the insert.
If anyone is curious, the drug-free interval before trying something else is 2-3 weeks, which corresponds to when insurance approves and sends the next medication. He said he wanted to give my white chance to rebound before suppressing them again by a drug with a different mechanism of action.
I was hoping a thread like this would be helpful to anyone considering Tec or any newbies looking for others' experiences, or people wondering if others' experience are similar to theirs. I would have loved a thread like this when I was first starting so hopefully it is helping others!
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