Tecfidera on the way!

[amyrising]

I got a call that my Tecfidera is on its way. I am scared to start it. I don't want any more pills and if it isn't going to improve my symptoms, what is the point? I really do know what the point is...I'm just feeling anxious.

What should I expect when starting it?

[Mkc3031]

I am beginning my ninth month, knock woods, not a single side effect. I take it with breakfast and after dinner. Good luck and have a Merry Christmas!

[Don2480]

I was anxious as well but it has been the smoothest DMD transition I have ever had...I have no side effects and feel great on it...plus no shots woot woot...

I have never taken it on an empty stomach but only used aspirin proactively for a week..

Remember most people who have great experiences don't start threads.

[gouletmommy]

I just finished my 2nd week on Friday. I was really nervous before starting because I heard of everybody's stories. I realized that everyone is different and everybody responds differently. I have kept a journal since starting tecfidera so I have something to bring to my neurologist appointment. I know I have not felt the best and my neurologist told me that I need to try to give this 2 to 3 months. I know what the my goal is. So if that means I need to deal with side effects that may not be so pleasant for the first couple months, its what I have to do. I have 3 small kids that need their mom. Good luck with the beginning of your journey. Take one day at a time and do not forget what your end goal is.

[football-mom]

My tec will be here tomorrow. I'm a little nervous to start as well remembering how long it took for the Rebif symptoms to go away. But hey, no shots of acid!

[amyrising]

Thanks guys! I do need to remember to give it time and keep the end goal in sight, thanks for the reminder gouletmommy. I too have 3 kids at home who need me

[rsinger]

tecfidera

Thank goodness for the good posts. So good to see that not everyone has trouble. My neuro says that only a small percentage of people have problems. I have irritable bowel syndome that developed after a stomach bug. Have not started my Tedfidera yet. Any one else with stomach issues before starting this medication?

[tracibk]

The only thing I do is make sure I eat something before I take the pill. I got heartburn after starting the full dose which woke me up (never had it before). So I would take zantac before eating dinner but after doing that for a week I stopped to see if it was still happening and it was gone so I don't take it anymore. Best of luck!

[amyrising]

I have irritable bowel ever since my Diverticulitis. I am afraid of more stomach issues as well.

[amyrising]

I'm on day 2 of the Tec. I can feel the fire growing in my belly. Can I take something for it?

[purpleivy]

Just got my phone call today that my Tec will be here tomorrow. Not starting it til next Monday, but I am freaked out already! Crossing my fingers that I'll be one of the lucky ones!

[tl-tr3]

I had stomach issues before starting Tec

I'm on day 2 of the Tec. I can feel the fire growing in my belly. Can I take something for it?

I have pretty severe GERD and my neuro explained the Tec would make probably aggravate it/make it worse.
He suggested adjusting my medication.
He suggested adding Pepcid before I take Tec, besides my usual daily Protonix.
It's working so far.

[ladybug162]

I had a rough start with tec, but have been on it for about 6 months now and am doing great. It's hard to believe it's already been 6 months as it seems like only yesterday I was so nervous about starting!

I suffer with really bad GERD and when I first started tec it felt like a hole was being burned right through my stomach. What I've found to really help me....especially with the evening dose is to take with a glass of milk and a zantac. I never take a dose without food/milk and a zantac.

Good luck to you and I hope things get better.

[amyrising]

Today has been pretty rough. My stomach has been so sore and bloated. I feel like I may have gastritis. I also have been having some sort flushing. My face and ears were on fire! After that passed I am freezing. I don't have a fever but I have chills.

[ladybug162]

Today has been pretty rough. My stomach has been so sore and bloated. I feel like I may have gastritis. I also have been having some sort flushing. My face and ears were on fire! After that passed I am freezing. I don't have a fever but I have chills.

Oh I'm so sorry your are having such a rough go at it! It can be scary and frustrating at the same time. I sincerely hope things start to look up for you soon! You are in my thoughts. ♥