Hi, new to this site. Was "officially" diagnosed in 1997 - relapsing remitting. Since 1997, been on Betaseron, changed to Copaxone around 2009, and starting Tecfidera on Thursday. All things considered, I am well, have a good attitude and live a good life! I would love to connect with some folks who have recently started Tecfidera!
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Newbie to MSWorld - Tecfidera??
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Welcome to MSWorld jennt!! So glad you are her among us. We have some incredible people here with lots of knowledge and lots of experience and we all understand what it means to live with MS! It sounds like you have a great attitude!
We have a forum about medications and treatments with lots of information about Tecfidera. I am going to move this thread over to that forum so it is more visible where others have joined in sharing their experiences.
Good luck on this new drug and hope it works well for you!1st sx '89 Dx '99 w/RRMS - SP since 2010
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I'm only about a month into tecfidera. So far I've had three main side effects: flushing (hotness, redness and itching), abdominal pain and nausea. I don't get these side effects every time that I take the meds, but I get them on a pretty regular basis.
The flushing has gotten a lot better and only happens occasionally now (maybe once a week).
The nausea and abdominal pain seem like they're getting once. I pretty much have it on a daily basis and last night they woke me up out of a dead sleep and kept me up for about 4 hours.
At this point, I really wish I could go back on Gilenya (I didn't have any daily side effects with the drug), but that's not an option for me anymore because of the infections I was getting.
I know this isn't the most positive post, but it's my honest experience thus far.
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tec
Started Tecfidera this morning. Hopefully I will have minimal side effects, am worried about that.I used to be in control of my body. Now the body is in control of me!
DX RRMS 1997 SX 1995 or earlier
Breast Cancer 2002 thought the chemo put me into remission. Boy was I wrong!
DMD Avonex 5/11, Baclofen 60mg 10/2012, Tecfidera 6/19/13
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Just heard back from my neurologists office and they have a pretty simple over the counter cocktail to counteract the flushing and abdominal symptoms:
- Take each pill with a meal
- Take 1 baby aspirin (81 mg) each day
- Take 1 zantac pill before each tecfidera pill
This plan lasts for the first 3 months while my body adjusts. If you run into issues, call your neuro. Apparently most of them have a pretty quick fix for the stomach and flushing issues.
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Originally posted by jennt View PostHi, new to this site. Was "officially" diagnosed in 1997 - relapsing remitting. Since 1997, been on Betaseron, changed to Copaxone around 2009, and starting Tecfidera on Thursday. All things considered, I am well, have a good attitude and live a good life! I would love to connect with some folks who have recently started Tecfidera!
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Today is day 5 for me. I have had no issues! Maybe a very SLIGHT flushing within a few hours of taking (only a couple of times). I take one Prilosec each morning and take my Tec with breakfast and dinner on a full stomach. I know it's still early and I am still on the lower starter dose, but so far so good! Sure hope this continues. I am LOVING no injections after 16 years!!!
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