considering BG12
Brenda:
I really need some knowledgeable advice. My thoughts are that nothing is better than hearing from someone who has actually experienced the problem and it's side effects. So I do hope that I will hear from you. Let's face it, no one can understand our problems unless they have walked in our shoes for a period of time.
I have been on almost all of the DMD's. Beta seron, copaxone, rebiff, and now on copaxone again. (seems to be the one with less side effects.) I am now having frequent exacerbations and I am afraid that the roids are going to leave me with some very serious bone loss.
I recently talked to my Neuro and he has suggested some alternative therapy for me, one of which is Tysabri. I am scared to death of this drug, I have also tested +for JCV and really don't want to risk the chance of PML.
I am leaning heavily on the BG12 and would love to hear about your experience with this drug. I also wonder if it helps with existing symptoms, as I have been dizzy for 17 years. Sure would be nice to get off of this merry go round.
I hope I hear from you soon as I have to make a decision in a few days.
Thanks,
Cindy
Originally posted by BrendaV
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I really need some knowledgeable advice. My thoughts are that nothing is better than hearing from someone who has actually experienced the problem and it's side effects. So I do hope that I will hear from you. Let's face it, no one can understand our problems unless they have walked in our shoes for a period of time.
I have been on almost all of the DMD's. Beta seron, copaxone, rebiff, and now on copaxone again. (seems to be the one with less side effects.) I am now having frequent exacerbations and I am afraid that the roids are going to leave me with some very serious bone loss.
I recently talked to my Neuro and he has suggested some alternative therapy for me, one of which is Tysabri. I am scared to death of this drug, I have also tested +for JCV and really don't want to risk the chance of PML.
I am leaning heavily on the BG12 and would love to hear about your experience with this drug. I also wonder if it helps with existing symptoms, as I have been dizzy for 17 years. Sure would be nice to get off of this merry go round.
I hope I hear from you soon as I have to make a decision in a few days.
Thanks,
Cindy
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