Hello All,
I'm 41 years old and found out I had MS in January 2015. I have been on Rebif since April 2015. My presenting symptom was a headache in my left eye that turned out to be optic neuritis. The doctor thinks I've probably had MS for about 2 years. I was only on the 44 mcg for about a month when they switched me to the 22 mcg because the Rebif lowered my white blood cell count. I have been on the 22 mcg ever since and my wbc has recovered.
I had my 1 year MRI last week and just got the results. My neurologist and I decided this would be the MRI that would determine whether I would stay on Rebif or go to another DMD. The important part of the results that I wanted to relay to you is this: "All lesions are stable except for the previously described right subcortical deep white matter lesion. This has decreased in size previously measured 12 x 5 x 10 mm, presently 9 x 5 x 8 mm. No new lesions. No intra cranial hemorrhage."
Based on these findings my neurologist has decided to keep me on Rebif. I am overjoyed with these results and am hoping this DMD will workout for a few years, at least. I have lots of bruises from the shots but I sleep through any side effects and do not pre-medicate in any way. Everyone's experience with DMDs is different, but I can remember reading everything in sight looking for information on drugs and not seeing a lot of personal experiences with Rebif. I hope this info will help anyone out there looking for insight from someone who has used it for a year with decent results so far!
Best to you all...and please let me know if I can answer any questions. I'll add that since that initial optic neuritis incident and a twitch in my face that bugged me through the month of July I haven't had any relapses or symptoms thus far.
Lj
I'm 41 years old and found out I had MS in January 2015. I have been on Rebif since April 2015. My presenting symptom was a headache in my left eye that turned out to be optic neuritis. The doctor thinks I've probably had MS for about 2 years. I was only on the 44 mcg for about a month when they switched me to the 22 mcg because the Rebif lowered my white blood cell count. I have been on the 22 mcg ever since and my wbc has recovered.
I had my 1 year MRI last week and just got the results. My neurologist and I decided this would be the MRI that would determine whether I would stay on Rebif or go to another DMD. The important part of the results that I wanted to relay to you is this: "All lesions are stable except for the previously described right subcortical deep white matter lesion. This has decreased in size previously measured 12 x 5 x 10 mm, presently 9 x 5 x 8 mm. No new lesions. No intra cranial hemorrhage."
Based on these findings my neurologist has decided to keep me on Rebif. I am overjoyed with these results and am hoping this DMD will workout for a few years, at least. I have lots of bruises from the shots but I sleep through any side effects and do not pre-medicate in any way. Everyone's experience with DMDs is different, but I can remember reading everything in sight looking for information on drugs and not seeing a lot of personal experiences with Rebif. I hope this info will help anyone out there looking for insight from someone who has used it for a year with decent results so far!
Best to you all...and please let me know if I can answer any questions. I'll add that since that initial optic neuritis incident and a twitch in my face that bugged me through the month of July I haven't had any relapses or symptoms thus far.
Lj
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