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CHANGES AT MSWORLD - MSWORLD'S CLOSURE

We began with a mission and purpose to help others living with MS.

We were excited to get going!

And hit a few bumps along the way…

However, in all seriousness, we remain grateful for our amazing volunteers, members & all who have made MSWorld a valuable resource for all!

July 10, 2024, we celebrated the goodness of these past 28 years. With a heavy heart, we will be ending our services.

We need a financial miracle to keep going forward.

We thank all for your support.

MSWorld's website will close on October 16, 2024.

“I personally want to wish all of you the guidance to find this type of support, as so many do here. Also, my prayers and love extends beyond my understanding. It has been a pleasure to steward this journey.”

God Bless you, Kathleen

Kathleen Wilson
Founding President
❤️

we leave knowing that
we did our best and
stayed true to our mission and purpose.


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Plegridy and relapses

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    Plegridy and relapses

    Hi guys,

    I have tried multiple MS medications which include Tecfidera - could not tolerate the symptoms, Gilenya - white blood cell count dropped critically low. My neurologist wants to put me on Plegridy, but I wanted to know if anyone had problems with more frequent relapses. I am fairly new to this disease as I was only diagnosed with it 15 months ago. I am trying to keep my MS from progressing as much as possible.

    #2
    Please investigate the overcomingms site by George Jelinek- it has lifestyle changes that do matter a lot.

    Comment


      #3
      Plegridy for 9.5 months

      Hi - I was Dx'd almost 1 year ago, and chose Plegridy as my first DMD. I've been on it since February, and my last MRIs at the end of August were stable (no changes) and I've had no relapses (crossing my fingers).

      I'm sorry you've had such a hard time with your first medications. Wishing you all the best.

      Cheryl
      Cranial VIth Nerve Palsy (2008, 2014); Partial Myelitis (9/2015); RRMS Dx (11/18/2015); Plegridy (2/2016)

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        #4
        The 2x/month injection is nice bonus with Plegridy. I highly suggest you drink LOTS of water for 2 days before injecting. I usually take Aleve one hour before the injection at night. Throughout the night I'll have really bad joint pain, flu-like symptoms, and body aches. That will mostly disappear by the morning when I wake up though.

        I have yet to have any new relapses so far on Plegridy, but different treatments work differently for each individual. It's all about finding what works best with your body and sticking with it until it doesn't, then finding a new treatment. Stay strong!

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