Had my first two half-doses of Ocrevus last October/December and was due for another this month until it was cancelled due to Corona. I'd already told my neuro that I wasn't interested in continuing with it because of all the issues I've had since then, but he said we'd discuss it at my next appointment, which is next week.
I had all the standard side effects during my first infusion (itchy rash, throat closing over, etc.). From that point until very recently I've had nonstop colds, cough all night long or wake up choking, recurrent sinus infections, UTI's (after only ever having 2 before in my 55-year life), clogged ears, and serious dental issues. My teeth haven't been good for years, but I still had most of them and they'd never caused me any pain. Over these last few months, not only did I need penicillin twice for tooth infections, but I've lost 5 teeth and parts of 4 more. I also had "a" toothache that lasted 10 days and bounced around from tooth to tooth and both sides of my mouth.
These last couple weeks, I've felt like a whole new person. I still have to rest frequently and can't walk any distance, but I have more strength and energy than I've had in more than 5 years. I'm able to stay awake all day long, can walk up and down steps several times a day (as opposed to twice a week for the last 2 years), and just feel in general like my former strong, capable self.
Is this a sign that the Ocrevus is working for me, albeit earlier than they say it should? Is it a result of the fact that my family life is in a bit of an upheaval right now? We're combining 3 households into 2, and my solitary life now has a semi-permanent guest. I'm tripping over boxes as I try to find space for the things that are staying here while not mixing up the boxes that will be leaving soon. It's a happy time for me, because the kids are all back home now (one will be 20 minutes away, but that's still close). Could it just be some kind of emotional high that'll see me crashing shortly?
I was opposed to trying DMT's in the first place, based on my age, the length of time I've been dealing with all this (40 years), and the side effects, but I don't know what to say to the neuro. Should I go with my gut feeling and drop it, or should I see this good spell as a sign to continue it for a while? Yes, yes. I know that none of you are medical professionals. Just give me your honest opinions.
I had all the standard side effects during my first infusion (itchy rash, throat closing over, etc.). From that point until very recently I've had nonstop colds, cough all night long or wake up choking, recurrent sinus infections, UTI's (after only ever having 2 before in my 55-year life), clogged ears, and serious dental issues. My teeth haven't been good for years, but I still had most of them and they'd never caused me any pain. Over these last few months, not only did I need penicillin twice for tooth infections, but I've lost 5 teeth and parts of 4 more. I also had "a" toothache that lasted 10 days and bounced around from tooth to tooth and both sides of my mouth.
These last couple weeks, I've felt like a whole new person. I still have to rest frequently and can't walk any distance, but I have more strength and energy than I've had in more than 5 years. I'm able to stay awake all day long, can walk up and down steps several times a day (as opposed to twice a week for the last 2 years), and just feel in general like my former strong, capable self.
Is this a sign that the Ocrevus is working for me, albeit earlier than they say it should? Is it a result of the fact that my family life is in a bit of an upheaval right now? We're combining 3 households into 2, and my solitary life now has a semi-permanent guest. I'm tripping over boxes as I try to find space for the things that are staying here while not mixing up the boxes that will be leaving soon. It's a happy time for me, because the kids are all back home now (one will be 20 minutes away, but that's still close). Could it just be some kind of emotional high that'll see me crashing shortly?
I was opposed to trying DMT's in the first place, based on my age, the length of time I've been dealing with all this (40 years), and the side effects, but I don't know what to say to the neuro. Should I go with my gut feeling and drop it, or should I see this good spell as a sign to continue it for a while? Yes, yes. I know that none of you are medical professionals. Just give me your honest opinions.
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