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    Unable to tolerate?

    Is there anyone out there who has been unable to tolerate the side effects of this DMT? Iíve tried to research but havenít been able to find anyone who has stopped Ocrevus because they couldnít tolerate it.
    DX 3/2018; started Ocrevus 3/30/18 (EDSS 2.5)

    "Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day."
    - 2 Corinthians 4:16

    #2
    Hi smalltowngirl,

    I think youíre ahead of me in treatment with this DMT, Iíve not had any issues in the first two halves Iíve had and I am not sure when tolerance would become an issue...maybe reactions during the infusions?

    Hopefully others can chime in here.

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      #3
      Thanks for the response, MisterMan. I get sick after each infusion, but thatís tolerable. However, I have gotten skin infections, which is a completely new thing. Iíve never dealt with anything like that before, and now Iím having my second ordeal. It just doesnít seem like a coincidence.

      This one is on my face! Ugh.
      DX 3/2018; started Ocrevus 3/30/18 (EDSS 2.5)

      "Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day."
      - 2 Corinthians 4:16

      Comment


        #4
        Wow, sorry youíre experiencing this. Hope itís not too serious!

        Let us know what comes of it.

        Comment


          #5
          Am about to stop Ocrevus.

          Hello,
          Iíve been Ocrevus for a year and didnít take my 4 th dose last November. Iíve been off it for last 4 months and feel much better. Iím relapsing secondary progressive.

          I can can honestly say itís the first time I havenít been on a dmd since 1998. I no longer feel sick or feel like I have the flu. I took rebif from 98 to 2004, tysabri after my first daughter was born and started Ocrevus within a few weeks of it being available in Canada in sept 2017.

          I knew how hard hard this was on me when I started getting grey hair and my skin and hair became extremely dry. Iíve stayed away from Ocrevus and I no longer have dry skin and the greying miraculously stopped within 3 months. My husband noticed I just look healthier too.

          hope this helps,
          paulette

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