My neuro has approached me to join a study he will be conducting with siponimod for SP MS.
He was still waiting approval so couldn't tell me much. A quick Google tells me that this drug may be headed for Phase III which I'm thinking he's doing (?).
Only thing he could tell me is that they are looking for 1500 participants, the longest it would run is 22 months. It will have a 2:1 placebo ratio, 2 getting the drug & 1 not.
Confused if I should join because my disability is slowly deteriorating. I'm on Rebif (even though it technically isn't for SP). My Mri has come back clear 2 years in a row. My husband thinks I shouldn't because the Mri came back clear.
The nature of SP is that it slowly gets worse. Right now I only have full use of 1 arm & 1 leg. Don't really want to risk losing them but I think MS and life in general is a crapshoot.
He was still waiting approval so couldn't tell me much. A quick Google tells me that this drug may be headed for Phase III which I'm thinking he's doing (?).
Only thing he could tell me is that they are looking for 1500 participants, the longest it would run is 22 months. It will have a 2:1 placebo ratio, 2 getting the drug & 1 not.
Confused if I should join because my disability is slowly deteriorating. I'm on Rebif (even though it technically isn't for SP). My Mri has come back clear 2 years in a row. My husband thinks I shouldn't because the Mri came back clear.
The nature of SP is that it slowly gets worse. Right now I only have full use of 1 arm & 1 leg. Don't really want to risk losing them but I think MS and life in general is a crapshoot.
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