Trial
Sorry JerryD - I was pretty unclear, sometimes it just makes so much sense in my head... I'll try to answer your questions better .
I was approached by my neuro after having two to three relapses per year on both Rebif and the ONO trial (similar to Gilinya). the also offered Copaxone or another trial called Ocrelizumab. I chose to do the Alemtuzumab (or Campath) for some of the reasons I listed below.
my Neuro is at a local MS clinic at a research hospital. he is pretty progressive but never makes me feel like I have to do something- rather that here is what they have to offer if I should chose to access it.
Yes I did the first five day infusion the third week in January. So time will tell. My first check up was good and due to have my second blood test soon. So I'm really early in the study so don't have any idea how/if it will work for me.
I have for the last five years had at least 2 relapses per year all involving my legs and mostly sensory based symptoms, pain and heaviness in my legs. The last one August 2012 took till Christmas to feel like I had regained (most) of what I had and able to walk without a cane. So based on my past I'm due for one soon but feel good so maybe it will continue
Let me know if you have other questions and I'll 'attempt' to answer them.
Sorry JerryD - I was pretty unclear, sometimes it just makes so much sense in my head... I'll try to answer your questions better .
I was approached by my neuro after having two to three relapses per year on both Rebif and the ONO trial (similar to Gilinya). the also offered Copaxone or another trial called Ocrelizumab. I chose to do the Alemtuzumab (or Campath) for some of the reasons I listed below.
my Neuro is at a local MS clinic at a research hospital. he is pretty progressive but never makes me feel like I have to do something- rather that here is what they have to offer if I should chose to access it.
Yes I did the first five day infusion the third week in January. So time will tell. My first check up was good and due to have my second blood test soon. So I'm really early in the study so don't have any idea how/if it will work for me.
I have for the last five years had at least 2 relapses per year all involving my legs and mostly sensory based symptoms, pain and heaviness in my legs. The last one August 2012 took till Christmas to feel like I had regained (most) of what I had and able to walk without a cane. So based on my past I'm due for one soon but feel good so maybe it will continue
Let me know if you have other questions and I'll 'attempt' to answer them.
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