Normand44, I hate so bad you are going through this but it is validating for me to know that out of everyone in the world that has taken lemtrada that I felt that I was the only one in the whole world that was having serious health issues from lemtrada instead of having these amazing miraculous recovery story.
My latest update is that I am getting better but far from where I was when I was on Tysabri. This has been a nightmare for me and it's not over. They are going to flush my knee in about 4-6 weeks to see if they can get more of the fungal infection out.
Vanderbilt says I have infection in my body but they just don't know where. I have not heard a word from Lemtrada, I got copies of my monthly blood tests which clearly show there are problems.
For those that are having remarkable improvement I am so happy for you and I must say that there is some improvement in some of my MS symptoms, my eyes have improved and I don't seem to have the random pain that I used to have but however all these other health issues are not worth those little improvements. I have been in life threatening conditions 2 times, I am not ready to die, I am fighting with every bit of strength I have.
Thank you so much for sharing this info with me. I hope things turn around for you, you are in my prayers.
My latest update is that I am getting better but far from where I was when I was on Tysabri. This has been a nightmare for me and it's not over. They are going to flush my knee in about 4-6 weeks to see if they can get more of the fungal infection out.
Vanderbilt says I have infection in my body but they just don't know where. I have not heard a word from Lemtrada, I got copies of my monthly blood tests which clearly show there are problems.
For those that are having remarkable improvement I am so happy for you and I must say that there is some improvement in some of my MS symptoms, my eyes have improved and I don't seem to have the random pain that I used to have but however all these other health issues are not worth those little improvements. I have been in life threatening conditions 2 times, I am not ready to die, I am fighting with every bit of strength I have.
Thank you so much for sharing this info with me. I hope things turn around for you, you are in my prayers.
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