Lemtrada - My Experience July 13-17
Each morning before treatment:
- Zantac 150mg (Generic=Ranitidine)
- Zyrtec 10mg (Generic=Cetirizine)
- Prescription Valtrex/Acyclovir 150mg (will take until Dr. advises to stop)
- Tylenol
Day 1 thru Day 5 via IV - all followed this:
- Hours 1 and 2: Benadryl and Solumedrol
- Hours 3 and 6: Lemtrada
- Hours 7 and 8: Observe
My notes by day:
- day 1: slight headache, was weak, and couldn't sleep well most likely due to the Solumedrol.
- day 2: stronger and again not real sleepy.
- day 3: about the same and slept much better.
- day 4: Solumedrol reduced to half dose, really sleepy in the evening.
- day 5: Solumedrol again at half dose, slept well.
Hit with a really bad Solumedrol rebound on Saturday, was soooooooooooooooo weak (fell twice). Was a little better on Sunday and a little better today.
Now the waiting to see the improvements to come!!
I will have a follow-up Dr. appointment in 1 month.
Note: I was on Aubagio 14mg January 2013 til now, after 39 Tysabri infusions.
I'm progressive/relapsing and use a walker for really short distances inside the house and mostly a wheelchair.
Each morning before treatment:
- Zantac 150mg (Generic=Ranitidine)
- Zyrtec 10mg (Generic=Cetirizine)
- Prescription Valtrex/Acyclovir 150mg (will take until Dr. advises to stop)
- Tylenol
Day 1 thru Day 5 via IV - all followed this:
- Hours 1 and 2: Benadryl and Solumedrol
- Hours 3 and 6: Lemtrada
- Hours 7 and 8: Observe
My notes by day:
- day 1: slight headache, was weak, and couldn't sleep well most likely due to the Solumedrol.
- day 2: stronger and again not real sleepy.
- day 3: about the same and slept much better.
- day 4: Solumedrol reduced to half dose, really sleepy in the evening.
- day 5: Solumedrol again at half dose, slept well.
Hit with a really bad Solumedrol rebound on Saturday, was soooooooooooooooo weak (fell twice). Was a little better on Sunday and a little better today.
Now the waiting to see the improvements to come!!
I will have a follow-up Dr. appointment in 1 month.
Note: I was on Aubagio 14mg January 2013 til now, after 39 Tysabri infusions.
I'm progressive/relapsing and use a walker for really short distances inside the house and mostly a wheelchair.
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