please help me with some details...i'm at my 31 dose of tysabri & its working well for me--although i do hate having to get infusions every month...
earlier i had read that Gilenya was going to provide assistance of $800 per patient per moth and an additional $600 per patient for additional testing or monitoring.
the cost of gilenya would be set at $4,000/ month.
that's too expensive for me, on a medicare part d plan with the donut hole. so i put it out of my mind as a possibility.
medicare approved charge for tysabri is $3,063 with a $140 charge for the infusion in WI----
so gilenya is more expensive than tysabri and since my tysabri is covered entirely by medicare & my supplimental insurance it would really be more expensive to me.
gilenya is outside of my ability to pay---so i wrote it off as an option. thought i had to stay with an iv med because i was on medicare---i'm still sick of the infusion and i was looking forward to lemtrada coming out late next year with its once yearly infusion(it's more effective than tysabri...but i'm doing well on tysabri so i don't need the increased effectiveness, its just the once a year treatment-that i find attractive in lemtrada)
so any way i read this reply in the tysabri to gilinya thread. reply #15 by scooter who says 500% of poverty and the drug is free of cost??? well i am below 500% of poverty line but i am on a medicare part d plan- with its donught hole
her reply here #15
http://www.msworld.org/forum/showthread.php?t=106589
in this article written in bloombergs it says the cost of Gilenya will be set at $4,000 with $800 per month assistance for co pays and $600 for testing.
what's the deal? is gilenya still to expensive for me? even if i get gilenya free of cost because of my income level, would i still need to get on to copaxone to prevent the tysabri rebound affect & would i have to get patient assistance for both copaxone & gilenya to switch?
last week i had my 6 month appointment with the doc and i told her i could not afford gilenya that because i was on medicare i had to stay with an iv med. i did ask her to reduce the frequency of my ty infusions from 4 weeks to 6 weeks & i told her i would be interested in lemtrada when it is released next year....but i wasn't interested in gilenya because it wasn't affordable to me, that i had seen what assistance they were offering and it was too expensive compared to tysabri for me.
but if gilenya is affordable to me i would be interested in that...i really do not need the greater eficiency of ty or lemtrada, i just need the affordability of on IV med while on medicare.
it will be embarrassing to have to bring this up at my next appointment if i was wrong---anyone switch from tysabri to gilenya while on medicare? is copaxone patient assistance needed too?
earlier i had read that Gilenya was going to provide assistance of $800 per patient per moth and an additional $600 per patient for additional testing or monitoring.
the cost of gilenya would be set at $4,000/ month.
that's too expensive for me, on a medicare part d plan with the donut hole. so i put it out of my mind as a possibility.
medicare approved charge for tysabri is $3,063 with a $140 charge for the infusion in WI----
so gilenya is more expensive than tysabri and since my tysabri is covered entirely by medicare & my supplimental insurance it would really be more expensive to me.
gilenya is outside of my ability to pay---so i wrote it off as an option. thought i had to stay with an iv med because i was on medicare---i'm still sick of the infusion and i was looking forward to lemtrada coming out late next year with its once yearly infusion(it's more effective than tysabri...but i'm doing well on tysabri so i don't need the increased effectiveness, its just the once a year treatment-that i find attractive in lemtrada)
so any way i read this reply in the tysabri to gilinya thread. reply #15 by scooter who says 500% of poverty and the drug is free of cost??? well i am below 500% of poverty line but i am on a medicare part d plan- with its donught hole
her reply here #15
http://www.msworld.org/forum/showthread.php?t=106589
in this article written in bloombergs it says the cost of Gilenya will be set at $4,000 with $800 per month assistance for co pays and $600 for testing.
what's the deal? is gilenya still to expensive for me? even if i get gilenya free of cost because of my income level, would i still need to get on to copaxone to prevent the tysabri rebound affect & would i have to get patient assistance for both copaxone & gilenya to switch?
last week i had my 6 month appointment with the doc and i told her i could not afford gilenya that because i was on medicare i had to stay with an iv med. i did ask her to reduce the frequency of my ty infusions from 4 weeks to 6 weeks & i told her i would be interested in lemtrada when it is released next year....but i wasn't interested in gilenya because it wasn't affordable to me, that i had seen what assistance they were offering and it was too expensive compared to tysabri for me.
but if gilenya is affordable to me i would be interested in that...i really do not need the greater eficiency of ty or lemtrada, i just need the affordability of on IV med while on medicare.
it will be embarrassing to have to bring this up at my next appointment if i was wrong---anyone switch from tysabri to gilenya while on medicare? is copaxone patient assistance needed too?
. since i was on tysabri, i didn't realize they had done that. i will not be able to change into the plan with the ms meds until Jan 2012---so i'm on tysabri until then. it's kind of a relief not having to make a decision until then, but a problem if i have to stop Tysabri i will have to find another iv med to go to, until i have access to the rest of the ms drugs in january.
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