Hello:
My wife started Gilenya yesterday after 2 1/2 mo. off Tysabri. She had to be there at 8 AM for EKG and took pill at 8:30, her heart rate was around 103 I guess nerves (mine had to be 200, I was more nervous than she was) her heart rate dropped to 70 after around 3 hours and then came back up to 74 by the 5th hour and stayed around that, the EKG at the 6 hr point was better than the first one.
To make the story shorter she had no problems yesterday, except they forgot to take blood sample and she had to go back today. She did not feel as good today, really chilly feeling, she says sorta like a flu symptoms, but still better than problems she had with Avonex and Betasaron(?) we just hope and pray that it works and the side affects are not as bad as before. She really did good with her first and second pills.
I really believe that the Tysabri was slowly killing her!!
Woody
My wife started Gilenya yesterday after 2 1/2 mo. off Tysabri. She had to be there at 8 AM for EKG and took pill at 8:30, her heart rate was around 103 I guess nerves (mine had to be 200, I was more nervous than she was) her heart rate dropped to 70 after around 3 hours and then came back up to 74 by the 5th hour and stayed around that, the EKG at the 6 hr point was better than the first one.
To make the story shorter she had no problems yesterday, except they forgot to take blood sample and she had to go back today. She did not feel as good today, really chilly feeling, she says sorta like a flu symptoms, but still better than problems she had with Avonex and Betasaron(?) we just hope and pray that it works and the side affects are not as bad as before. She really did good with her first and second pills.
I really believe that the Tysabri was slowly killing her!!
Woody
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