delayed cycle....

[wynter27]

Has anyone on gilenya had a very late menstrual cycle? And if so for how long?

[Camcojo]

Maybe...

I did for a few months right after starting Gilenya but can't definitely say it was Gilenya related. GYN put me on hormones for a few days and it straightened out for about a year. Started having problems again this past summer. I've been on Gilenya for two years. I'm older (47) so it could be the beginnings of menopause and the timing is just a coincidence. However, I was very regular before starting Gilenya.

[KathyL]

I just started Gilenya 12 days ago. My period is about a week late. 100% sure I'm not pregnant. They said that although it's not on their list of potential side effects, they have heard a very small number of women experience it. What they couldn't tell me was if things regulated again after a while. Would love to hear if other women have also experienced this and how long it took to get "regular" again. No other side effects BTW so far (knock on wood).

[wynter27]

Ya, I have been on gilenya for just 2 months. Period months 2 weeks late.Hope it gets regular again

[KathyL]

Thought I would update my post above. On Gilenya for 15 days. My period just started today, so about 11 days late. I thought this might be helpful information for anyone else who experiences a delay, as although I could find a few comments about being late, I couldn't find comments so much about how late. We'll see what next month brings!

[wynter27]

oops

I wrote my post wrong it was supposed to say "been on gilenya for 2 months. My period was 2 weeks late"....that make more sense now

[figgy]

I've been on it for almost a year. Period is always late since starting. I just got it today. The last cycle was thanksgiving. Blah.

[Shellyrock]

Gilenya - 2 1/2 months - late periods, constant lower back pain, increased fatique

I have been on Gilenya since 26/10/2012. My first menstrual period was delayed one week and my second period was delayed two weeks. One of my pre-menstrual symptoms of sore nipples i used to get before my period started has for some strange reason come after my last period finished????
Also i have in the last month started having constant daily lower back pain, and today i have numbness in my left knee? Has anyone else experienced all of this? Will it get better the longer i am on Gilenya?