I thought I would give everyone an update. I have now been on Gilenya straight through since February 1st. I did come off Gilenya in December and January over a panic regarding low CD4 count. My doctors were able to prove that while on it, it goes down and when I come off it for about 2 weeks the numbers go back up. Also, if I notice any infections to go to the primary care doctor right away. I did have a relapse when I came off the Gilenya.
I am doing well now, except for the recurring headaches, which the doctor says are related but are treated separately with triptans, nerve blocks and botox injections. So far, the botox is helping cut down my headache days per month.
I hope everyone is doing well out there.
I am doing well now, except for the recurring headaches, which the doctor says are related but are treated separately with triptans, nerve blocks and botox injections. So far, the botox is helping cut down my headache days per month.
I hope everyone is doing well out there.
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