I've been on Gilenya for 16 months and so far so good. I haven't had any major side effects to date and on a daily basis, I can forget that I have MS. For me, this drug has been great... with a few minor hiccups.
Neuro's office called this morning to let me know that once again my lymphocyte count is too low. Time to retest again in 2 weeks. I know this song and dance well enough that it no longer scares me. Either my body will re-adjust (like it's done 2 times previously) or I'll push my neuro for Campath.
I'm very sorry for the people who died while on Gilenya. It'll be good to know one way or another whether G caused the deaths or whether it's just a case where people died while taking a drug and it wasn't related. Even if it turns out the drug caused those deaths, there's no way that will make me switch. The drug has worked well for me and I haven't had any heart issues whatsoever to date.
Just my mindless thoughts for what they're worth.
Neuro's office called this morning to let me know that once again my lymphocyte count is too low. Time to retest again in 2 weeks. I know this song and dance well enough that it no longer scares me. Either my body will re-adjust (like it's done 2 times previously) or I'll push my neuro for Campath.
I'm very sorry for the people who died while on Gilenya. It'll be good to know one way or another whether G caused the deaths or whether it's just a case where people died while taking a drug and it wasn't related. Even if it turns out the drug caused those deaths, there's no way that will make me switch. The drug has worked well for me and I haven't had any heart issues whatsoever to date.
Just my mindless thoughts for what they're worth.
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