Icepick Headaches

[Mama with MS]

ice pick headaches

Had to create a login to respond. My friend and I with MS use the same term to describe our headaches. They come on out of no where, last for a few minutes then disappear. We have always suspected that it related to MS, but your posting and the following information was very informing.

Thank you!

[Thinkimjob]

Is this the best they can do?
Knitting-needle-in-the-brain headaches?!? Inflamed brain lining? Worse balance? Might go blind?
I know, I know, not as scary as Tysabri, supposedly more effective than the CRABs, and there's nothing else.

[Just a small town girl]

In case my posts weren't clear, my neuro's office determined that this was actually a relapse and not a side effect from the Gilenya. I also made a post in the general forum about this and had at least 7-8 other people who are not on gilenya post that they had these too.

On a happy note, I couldn't stand the medicine they put me on so I stopped taking it and it actually seems like the icepick headaches have stopped!! Yay!