Hi, I am pretty desperate for advice at this point in my life. I get absolutely nothing from my doctor and everything is sugar-coated on the medication websites and the National MS Society.
SO - little background first - I'm 32. I've had MS for about 8 years. My main symptoms upon diagnosis were pretty bad double vision along with fatigue and numbness. I am also diabetic which means I cannot have steroid therapy because it really throws blood sugar out of whack. I am very much against immunosuppressive therapy and reluctantly started Copaxone when I was first diagnosed. I know (or was told) that it is the safest of all the "CRAB" drugs. I would never take Tysabri or anything like that. I also started taking Low Dose Naltrexone (LDN) soon after starting Copaxone.
It took me a long, long time to recover from my initial flare up, almost an entire year. Maybe because I'm diabetic, things seem to take longer to heal. I haven't had any major flare ups since then which I contribute to the LDN totally. However, I still have months where I feel weaker, I experience numbness, my legs feel like they are going to give out, I can't even keep my eyes open. I hate taking copaxone - I'm on 4 insulin injections a day being diabetic alone, this just adds to it. It is painful and I have lumps and varicose veins all over my body from the copaxone. I hate it. I also don't think it is doing anything.
**My desire is to stop taking Copaxone all together and I would ideally like advice from anyone who is taking LDN who used to take Copaxone too? Is there anyone out there? How did it go? I am nervous to stop taking it. I hate when you call to refill your prescription, they say have you missed any doses??? Like its the end of the world. They instill fear in me that I will get worse if I stop taking it. I am afraid if I stop taking it, even if I start back up again in the future, that it will cause permanent damage.
My eyes never fully recovered. I can feel myself getting slower as time goes on. And I'm only 32, it is so depressing. I hear so many good things from people that JUST take LDN, but I've never known anyone that takes both. Are there any doctors on this forum? Can anyone advise me if this is do-able, or am I making a mistake? Has anyone done this?
I feel like I can't live the rest of my life taking both. And no, I will absolutely never take the double-dose copaxone. I have started to try to take a little less Copaxone each time, just not pushing the syringe totally down to the bottom, but I feel like crap lately and not sure if its coincidence or not. I am really really depressed and feel hopeless and don't know what will happen in the future. Any advice would be greatly appreciated, thanks..
SO - little background first - I'm 32. I've had MS for about 8 years. My main symptoms upon diagnosis were pretty bad double vision along with fatigue and numbness. I am also diabetic which means I cannot have steroid therapy because it really throws blood sugar out of whack. I am very much against immunosuppressive therapy and reluctantly started Copaxone when I was first diagnosed. I know (or was told) that it is the safest of all the "CRAB" drugs. I would never take Tysabri or anything like that. I also started taking Low Dose Naltrexone (LDN) soon after starting Copaxone.
It took me a long, long time to recover from my initial flare up, almost an entire year. Maybe because I'm diabetic, things seem to take longer to heal. I haven't had any major flare ups since then which I contribute to the LDN totally. However, I still have months where I feel weaker, I experience numbness, my legs feel like they are going to give out, I can't even keep my eyes open. I hate taking copaxone - I'm on 4 insulin injections a day being diabetic alone, this just adds to it. It is painful and I have lumps and varicose veins all over my body from the copaxone. I hate it. I also don't think it is doing anything.
**My desire is to stop taking Copaxone all together and I would ideally like advice from anyone who is taking LDN who used to take Copaxone too? Is there anyone out there? How did it go? I am nervous to stop taking it. I hate when you call to refill your prescription, they say have you missed any doses??? Like its the end of the world. They instill fear in me that I will get worse if I stop taking it. I am afraid if I stop taking it, even if I start back up again in the future, that it will cause permanent damage.
My eyes never fully recovered. I can feel myself getting slower as time goes on. And I'm only 32, it is so depressing. I hear so many good things from people that JUST take LDN, but I've never known anyone that takes both. Are there any doctors on this forum? Can anyone advise me if this is do-able, or am I making a mistake? Has anyone done this?
I feel like I can't live the rest of my life taking both. And no, I will absolutely never take the double-dose copaxone. I have started to try to take a little less Copaxone each time, just not pushing the syringe totally down to the bottom, but I feel like crap lately and not sure if its coincidence or not. I am really really depressed and feel hopeless and don't know what will happen in the future. Any advice would be greatly appreciated, thanks..
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