Hi Everyone-
I have been on Copaxone for 4 years(with a break for a surprise pregnancy). Almost 3 weeks ago, I had my second IPIR---except accompanying this one was the sensation of swelling lips and face, and weird sensations in my throat. In addition for 2-3 hours afterward I had uterine cramping and spotting(weird right??). I recovered, but it scared me enough to go see my regular doc. She felt strongly that I was having an allergic response in addition to the IPIR, and didn't feel comfortable with me continuing the med. I called my neuro to get the ok to continue, but didn't get a call back so ended up being off for 2 weeks before i saw him for my usual 6 month appointment.
I found that a lot of things that had been going on with me, that I chalked up to other things, have significantly improved/gone away since being off Copaxone. Some of them aren't side effects you hear about, but when I researched and googled all the fancy words in the prescription insert, I found that they were possible side effects of Copaxone.
--transitory chest pain after injection--it was the sensation I get before an IPIR, but it didn't continue to be a full blown IPIR. This has been happening several times a week for the past few months
--extremely heavy periods
--Anxiety to the point of getting therapy-gotten much better since going off Copaxone--like a cloud lifted.
--Awful emotional PMS--several days out of the month, I wanted to divorce my husband and run away from my children. This month, since going off the med, I am a little more easily irritable, but nothing near what I had been experiencing
--The previous 2 months, I have had extremely painful cramping. This month? hardly any.
Just wanted to put that out there--the heavy periods are listed in the insert, but not in plain English. ;-)
I have been on Copaxone for 4 years(with a break for a surprise pregnancy). Almost 3 weeks ago, I had my second IPIR---except accompanying this one was the sensation of swelling lips and face, and weird sensations in my throat. In addition for 2-3 hours afterward I had uterine cramping and spotting(weird right??). I recovered, but it scared me enough to go see my regular doc. She felt strongly that I was having an allergic response in addition to the IPIR, and didn't feel comfortable with me continuing the med. I called my neuro to get the ok to continue, but didn't get a call back so ended up being off for 2 weeks before i saw him for my usual 6 month appointment.
I found that a lot of things that had been going on with me, that I chalked up to other things, have significantly improved/gone away since being off Copaxone. Some of them aren't side effects you hear about, but when I researched and googled all the fancy words in the prescription insert, I found that they were possible side effects of Copaxone.
--transitory chest pain after injection--it was the sensation I get before an IPIR, but it didn't continue to be a full blown IPIR. This has been happening several times a week for the past few months
--extremely heavy periods
--Anxiety to the point of getting therapy-gotten much better since going off Copaxone--like a cloud lifted.
--Awful emotional PMS--several days out of the month, I wanted to divorce my husband and run away from my children. This month, since going off the med, I am a little more easily irritable, but nothing near what I had been experiencing
--The previous 2 months, I have had extremely painful cramping. This month? hardly any.
Just wanted to put that out there--the heavy periods are listed in the insert, but not in plain English. ;-)
..who ever said that probably didn't have MS!) I am getting ready to start Tecfidera in the next week or so. I guess I will be able to chalk my hot flases/flushing to that instead of going through the change of life..I pity my poor family when that hits in earnest
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