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    #46
    Hey Mamabug!

    Exceptionally interesting post of your various doctors and the treatments and changes that are recommended for ultimate healthy living.

    I admire your willingness to explore these things!

    Good luck with whatever you choose!
    PPMS for 26 years (dx 1998)
    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

    Comment


      #47
      Originally posted by KoKo View Post
      Hey Mamabug!

      Exceptionally interesting post of your various doctors and the treatments and changes that are recommended for ultimate healthy living.

      I admire your willingness to explore these things!

      Good luck with whatever you choose!
      Thanks. I feel like our health is everything! When I am not healthy, there is so much of life which is impacted.

      As someone with MS, my health and abilities are very definitely compromised. Whatever I can pursue that might slow progression or reverse symptoms seems worth the expense and effort
      ~ Faith
      MSWorld Volunteer -- Moderator since JUN2012
      (now a Mimibug)

      Symptoms began in JAN02
      - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
      - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
      .

      - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
      - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

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        #48
        Impressive Mamabug
        God Bless Us All

        Comment


          #49
          Originally posted by REG53 View Post
          Impressive Mamabug
          Thanks.
          ~ Faith
          MSWorld Volunteer -- Moderator since JUN2012
          (now a Mimibug)

          Symptoms began in JAN02
          - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
          - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
          .

          - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
          - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

          Comment


            #50
            Originally posted by Mamabug View Post
            My update:
            (It's long. But, just skim the bolded titles and decide which sections you want to read.)

            - Dr. G, DC, Functional Medicine: I last saw him in spring. He did another IgG Food Sensitivity test. The number of food sensitivities that I have continues to decrease, which is a good thing. The results indicate that I am continuing to become healthier, even though I don't necessarily notice a decrease in MS symptoms.

            I haven't been back to him since spring, and I may not return. I continue to appreciate the stability that the GF, DF, mostly SF diet that I eat has afforded me. But, he has said that, if I don't take Tecfidera, that he has no additional help to offer. So, I looked into another functional medicine doctor and have seen Dr. J 3x.

            Dr. G is a chiropractor by training, a very highly educated chiropractor, functional medicine doctor, educated at Harvard but also much post-doctoral training at Yale. But, because he is not an MD, he is unable to rx medications. He also tends to be somewhat anti-traditional health solutions. My approach for the last 4 or so years has very much been trying to find a healthy combination of traditional and complementary/alternative strategies.



            12.465 views on 1/28/22
            Thanks for the update. My husband is a chiropractor. His knowledge and expertise has been instrumental in my care. It was my husband who got me my Lyme test (Armin labs out of Germany). He was able to draw the blood (chiropractors have phlebotomy training) and understand the results. He also got me started on an herbal Lyme protocol. This all happened while I waited over a YEAR to see an infectious disease doctor (who, thank God, believed me and has subsequently diagnosed me with Lyme disease and a PICC line and IV antibiotics). My husband, through routine adjustment keeps me mobile.

            At my last neuro visit the doc officially gave me an MS diagnosis based on new lesions on MRI. I have a spinal tap for March to also see if I have active Lyme or if it's post-Lyme. It was my neuro that wants to rule out neuro-lyme. It took a year and a half in our Canadian "health" care system to finally get answers. But, I'll admit that my care team seems great, now that I have one. They all correspond with one another so they're all on the same page.
            "Ring the bells that still can ring. Forget your perfect offering. There is a crack a crack in everything. That's how the light gets in.
            ~Leonard Cohen


            DX March, 2022. Ontario, Canada

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              #51

              At my request, my functional medicine doctor (Dr. J) told me about Dr. Kenneth Steven Sharlin, MD, MPH. He intrgrates the tools integrates the tools of conventional neurology with the skillset of functional medicine.

              He is the only physician in the world to be certified by Dr. Terry Wahls as a Wahls Protocol Health Professional and the only practicing neurologist (M.D.) to be certified by IFM.

              He uses a comprehensive program call "Brain Tune Up". He is located in Springfield Missouri and does some virtual appointments but also requires some in person visits.

              I'm currently not happy with my MS specialist's disdain for alternative treatments. I might consider this but it appears to require a bug commitment.

              Has anybody heard of him?

              https://sharlinhealth.wpengine.com/f...al-medicine-2/

              https://functionalmedicine.doctor/

              I'm certainly somewhat interested. They require 3 visits to Springfield Missouri within 6-12 months. Much of hubby's vacation time and sick time is already committed, so we'll have to think about it.
              ~ Faith
              MSWorld Volunteer -- Moderator since JUN2012
              (now a Mimibug)

              Symptoms began in JAN02
              - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
              - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
              .

              - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
              - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

              Comment

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