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Regularly Missing My Dose

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    Regularly Missing My Dose

    I have been on Beta for 13 years and am just tired of it. Tired of the shots, pain, bruises, knots and all. It is showing to, I regularly skip my shots sometimes only do it every three or four days. How bad is it to do that? I guess it is working to some degree, I have had no new lesions since I was diagnosed in 2002 but my walking and tightness has gradually gotten worse. I went from a cane to a walker several years ago and have maintained with the walker since. Seriously thinking about changing but I don't want to get any worse, what to do?

    I do understand, 18 years of this stuff. There's not much point taking a third of the dose.
    May as well take none. If you hate it, ask for a better/ different drug.

    I have hated every MS drug I've had to take, and I did the same thing, "no, had enough, I'll have a few days off", and the thing is you feel better.

    But you're not on the drug to feel better, which is the whole horrible irony of the thing.

    You're on a drug that makes you feel worse in the valiant attempt to stay more mobile.

    You, like me, have reached wheelie-walker stage, despite our best efforts. I don't blame anyone.

    (Well I do, dunno who, because I have spent all these years 'shooting up' and yes, it hurts, and yes, I feel sick, and yes I still can't walk, and maybe it gave me three extra years but those years are gone.

    And you have to pretend everything is A-okay, because you don't want to worry anyone.)

    That's just the way it is.

    I'm not as miserable as I sound. Really.


      Believe me..... The grass isn't greener on the other side

      Hi ShockedToo

      I was dx in 2011 and started on Beta. I hated the bumps and lumps and the crappy feeling all.the.time. I started missing shots on a regular basis and realized that only being on it for 4 years I should change meds. My Neuro put me on Copaxone and 3 months in I started having severe allergic reactions so on to the next medicine! I am on Tecfidera and honestly, I don't know what I was thinking but this has its own set of side effects. thinkimjob is correct. These meds aren't going to help us feel better. This is the crappy hand I got dealt. There is no miracle cure or drug or anything that's gonna change what we have.
      Just make sure that you are really ready to start with a whole new medicine and all that entails. Good luck to you
      Sx's 5/1996 Dx'd 9/2011
      RRMS- Betaseron, Copaxone, Tecfidera, Aubagio
      Hope is the thing with feathers, that perches in the soul, and sings the tune without words, and never stops at all