I'm seeking feedback from my fellow long-term (10 years or more) Avonex users. It's been 16 years since I began my Avonex journey (20 years since dx). I was dx in 1994, no DMDs then, a bad flare sent me back to neuro 3 years later who started Avonex immediately.
I've had a few mild flares on Avonex but no "enhancing" lesions or major MRI changes, but I have tons of black holes and lesions on MRI. Neurodegenerative diseases stink, huh? It's been a slow steady decline for me.
How have you been coping on Avonex? Have you resolved to "stick with it" long-term as I have? If not, what prompted switching your DMD or stopping it? Has it been a life-long commitment for you, too?
What stories can you share about your long-term Avonex journey? Hope you'll chime in. . .
I've had a few mild flares on Avonex but no "enhancing" lesions or major MRI changes, but I have tons of black holes and lesions on MRI. Neurodegenerative diseases stink, huh? It's been a slow steady decline for me.
How have you been coping on Avonex? Have you resolved to "stick with it" long-term as I have? If not, what prompted switching your DMD or stopping it? Has it been a life-long commitment for you, too?
What stories can you share about your long-term Avonex journey? Hope you'll chime in. . .
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