Hey guys,
I saw Kimba mention in another thread she had to deal with back/hip pain because even though the intrathecal baclofen could take the pain away, when it was that high she couldn't walk.
I've had a ramping up of my spasticity in the last few months. Hips and my good leg have been over the top. I had the pump upped 10% of my dose (and that was around 22 mcg more added, so I'm up near 245 mcg now) and I did get relief, from the hip spasticity and the leg spasticity. That was about 6 weeks ago, I think, and now the spasticity is starting to show itself again.
I went for over a year without getting any change in my dosage. And now my spasticity isn't behaving at all.
The lower back/hip spasticity pain and ROM impediment is the hardest to deal with, but what I'd like to know is how you knew when to back off the dose of baclofen, because even though it relieved that pain, it was too high a dose.
Did your legs go noodlely on you, did you fall? And Kimba (or anyone else who's experienced this) if I have to leave the Baclofen dose as is in order to walk, and just deal with the back/hip pain...what do you do to cope with that? I know that heat and getting off my feet will take it down rather quickly, but it really limits the amount of time I can be on my feet, maybe 15 minutes at tops.
I've had the MRI, hip, lumbar spine, and absolutely no problems with anything lower back or hips...so all these issues are chalked up to spasticity.
BG, I know you had your dose lowered at one time due to weakness in your upper body, by doing that did it leave other deficits to deal with?
Anybody's experience concerning when to back off the dose, and dealing with spasticity that's left would be appreciated.
I saw Kimba mention in another thread she had to deal with back/hip pain because even though the intrathecal baclofen could take the pain away, when it was that high she couldn't walk.
I've had a ramping up of my spasticity in the last few months. Hips and my good leg have been over the top. I had the pump upped 10% of my dose (and that was around 22 mcg more added, so I'm up near 245 mcg now) and I did get relief, from the hip spasticity and the leg spasticity. That was about 6 weeks ago, I think, and now the spasticity is starting to show itself again.
I went for over a year without getting any change in my dosage. And now my spasticity isn't behaving at all.
The lower back/hip spasticity pain and ROM impediment is the hardest to deal with, but what I'd like to know is how you knew when to back off the dose of baclofen, because even though it relieved that pain, it was too high a dose.
Did your legs go noodlely on you, did you fall? And Kimba (or anyone else who's experienced this) if I have to leave the Baclofen dose as is in order to walk, and just deal with the back/hip pain...what do you do to cope with that? I know that heat and getting off my feet will take it down rather quickly, but it really limits the amount of time I can be on my feet, maybe 15 minutes at tops.
I've had the MRI, hip, lumbar spine, and absolutely no problems with anything lower back or hips...so all these issues are chalked up to spasticity.
BG, I know you had your dose lowered at one time due to weakness in your upper body, by doing that did it leave other deficits to deal with?
Anybody's experience concerning when to back off the dose, and dealing with spasticity that's left would be appreciated.
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