I am in my third week of taking Ampyra 2x daily and I feel worse. I can hardly walk, my whole body is going numb and I am experiencing the worst fatigue I've had in a long time.
I'm seeing neuro tomorrow and will request MRI to rule out exacerbation and PML (I'm on Ty and JCV+). The only change has been the Ampyra.
I know it is supposed to take 6-8 weeks to become effective, but is is supposed to knock you on your behind before you feel better? All I can find online are great results, so I'm feeling very alone.
I should point out that this was my last hope for fatigue and the fact that it made it worse is so awful. I've done Provigil/Nuvigil, Adderall, Supplements. Nothing can break through my fatigue :-(
Thank you!
I'm seeing neuro tomorrow and will request MRI to rule out exacerbation and PML (I'm on Ty and JCV+). The only change has been the Ampyra.
I know it is supposed to take 6-8 weeks to become effective, but is is supposed to knock you on your behind before you feel better? All I can find online are great results, so I'm feeling very alone.
I should point out that this was my last hope for fatigue and the fact that it made it worse is so awful. I've done Provigil/Nuvigil, Adderall, Supplements. Nothing can break through my fatigue :-(
Thank you!
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