I've tried all of the CRAB drugs and none of them work...My MS is very aggressive right now. I'm having relapses back to back and I'm in a really bad relapse now. My MS specialist seems to think the next relapse very well could put me in a wheelchair. I'm having a lot of difficulty walking now, a lot of numbness, and I'm just exhausted all of the time. He's wanting to hesitantly prescribe me Ty but only until BG-12 comes out. This is because I'm JC positive and I've had prior immunosuppresant use. I'm definitely at a higher risk to get PML. I'm only 26 and I have a 4 month old baby. PML is the last thing I want to happen. If anyone would give me their opinion on whether or not I should start TY to get my MS under control I would really appreciate it. Would I be able to tell a difference after the first few infusions? I know everyone is different, but generally speaking...Any opinions or experience on how Ty helped you during the first 6 months or so would be great!
-
-
I'm just curious and maybe it will help other people answer better than I could, since I've not tried Tysabri:
Are you RR? Is there any reason you are not trying Gilenya? Also, did the CRAB drugs have no effect? And can you say what immunosuppressant you were on?
It's a tough decision, but some people do get excellent results from tysabri. It might give you a respite. -
yes, I haven't been told that I'm not RR..CRAB drugs did not work at all...still had relapses about every 4 months on them..I've taken Cellcept (that's the immunosuppressant that I've taken in the past) I took Cellcept in combo with Betaseron. Gilenya is still new and my neuro was actually leaning more toward Ty than Gilenya b/c of all the unknowns with it still.Comment
Comment