I was diagnosed at the beginning of this year, 50 years old, and have been on Copaxone 3 months. It's too soon to tell how it's working; in fact, it's too soon to tell how aggressive my MS plans on being. Clinically, I'm in pretty good shape. My MRIs and spinal tap say otherwise. If we could stop my disease progress right here, I'd have no complaints at all.
A couple days ago, my neuro suggested we could up my results with quarterly steroid infusions. But I'm thinking if we really want to up my odds, why not go straight to Tysabri? Or better yet, let's get the Lemtrada and really knock the MS out of the park.
When I listen to MS neurologists on the internet, it seems they are all excited about the new more aggressive drugs--even for people new to the disease.
Here's where I'd like to hear your thoughts:
I wonder if I'm a fool for being an old-fashioned Copaxone girl who's just hoping nothing else bad happens to me as my brain atrophies and I wait for secondary progression.
I'm currently leaning away from the steroid pulses. But I'm interested if anyone out there has experience using steroids in this way.
I'm also curious about any thoughts you all might have about staying on CRABs when all action is over at the Tysabri/Lemtrada/Stem Cell discussions on this board--lots of happy people feeling good! Yet I don't hear so much "Copaxone changed my life" here. Why not? Should I push for a more aggressive therapy?
A couple days ago, my neuro suggested we could up my results with quarterly steroid infusions. But I'm thinking if we really want to up my odds, why not go straight to Tysabri? Or better yet, let's get the Lemtrada and really knock the MS out of the park.
When I listen to MS neurologists on the internet, it seems they are all excited about the new more aggressive drugs--even for people new to the disease.
Here's where I'd like to hear your thoughts:
I wonder if I'm a fool for being an old-fashioned Copaxone girl who's just hoping nothing else bad happens to me as my brain atrophies and I wait for secondary progression.
I'm currently leaning away from the steroid pulses. But I'm interested if anyone out there has experience using steroids in this way.
I'm also curious about any thoughts you all might have about staying on CRABs when all action is over at the Tysabri/Lemtrada/Stem Cell discussions on this board--lots of happy people feeling good! Yet I don't hear so much "Copaxone changed my life" here. Why not? Should I push for a more aggressive therapy?
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