hello i have ms for 12yrs and finally got an appointment with a ms specialist and even though 5 previous consultants say ms even though i dont have lesions he said no its not ms, but a rare CNS disease. The only thing he agreed with was that due to evidence by other medical proffesionals it was advanced. I have two kiddies one as aspergers and both pregnancies were high risk and almost lost them i now dont know if i have passed it on or what the outcome is and he doesn't know how long it could take to find my new specialist as in the uk they are treated in specialist units, not your local neuro clinic. We have no idea what we are facing or the outcome i ask please does anyone have any idea what it maybe i have all symptons of secondary ms and writing it all down i would here till next week
hazexx
hazexx
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