bladder Botox

[04blackcobra]

On 3-9-12 I went to have the bladder botox due to frequency,urgency,and getting up at night to urinate. I did not improve on the medications for Overactive bladder Syndrome.

I was suprised that it was done under general anesthesia. It was supposed to be a a short stay and after I was able to urinate on my own be discharged. The procedure was at 7:15 am,I returned to the RR at 9:30 am. I could not pee by 11am. The urologist thought I would just need 1 cath and after that I was released. By 3 pm I still was able to only pass small amounts of blood and clots and was in retention with severe pain and needed to go to his office and a foley catheter was placed in and he got 1400 cc of blood and clots out. I went home and had the catheter in for 3 days and it was removed Monday. Over the weekend I had to irrigate the catheter frequently to keep it from clotting. Since then there has been much burning and the symptoms so far are worse than before the procedure. Today I feel slightly better and hope I will start seeing some improvement with the botox.

I will keep you all abreast of any changes.

[sw8689]

Oh my gosh, this is terrible for you! I considered that procedure a few years ago and things settled enough for me to cope.

Have you heard of fpilates? I think that's what it's called..I was at a workshop for it a couple of weeks ago and essentially it's Pilates specifically for the pelvic floor, to help women with bladder issues. It was quite interesting what I learned about how to work on training my pelvic floor to treat frequency and also hesitancy.

Anyway, hope your doing better.

[Laura]

I am sorry to hear of your bad experience. I found your post when I did a search for "bladder botox" because I have an appt coming up for the very same thing.
Thanks to your honest report, I will cancel. I was interested in this only to get off bladder meds due to severe dry mouth.

I hope everything will work out for you soon!

[rdmc]

On 3-9-12 I went to have the bladder botox due to frequency,urgency,and getting up at night to urinate. I did not improve on the medications for Overactive bladder Syndrome.

I was suprised that it was done under general anesthesia. It was supposed to be a a short stay and after I was able to urinate on my own be discharged. The procedure was at 7:15 am,I returned to the RR at 9:30 am. I could not pee by 11am. The urologist thought I would just need 1 cath and after that I was released. By 3 pm I still was able to only pass small amounts of blood and clots and was in retention with severe pain and needed to go to his office and a foley catheter was placed in and he got 1400 cc of blood and clots out. I went home and had the catheter in for 3 days and it was removed Monday. Over the weekend I had to irrigate the catheter frequently to keep it from clotting. Since then there has been much burning and the symptoms so far are worse than before the procedure. Today I feel slightly better and hope I will start seeing some improvement with the botox.

I will keep you all abreast of any changes.

How are you? I read this post the other day and wanted to respond, but never got around to it. That sounds horrendous. What type of doctor did the procedure?

I have had some bladder surgery myself (not botox) and never experienced anything near what you did post botox. I've had to have a foley afterwards till swelling went down, but never any blood, much less the amount you had. Did the surgeon give you an explanation?

Hope you're doing better.

[04blackcobra]

thanks for the kind thoughts. I was away for a few days. It was a urologist that had performed this procedure and had done so before. I did not post it to scare anyone away from having it performed. I believe my reaction may have been unique. it is now about 3 weeks and I may feel a slight improvement in frequency of going but the hesitancy and burning still remain as does getting up twice a night. I am not sure if I will have it again but if I do I will try a different doctor.

[jnet1589]

sorry to hear of your troubles. I go in every 6 months for Botox. It works great for me but I do have to cath. for me it is no big deal. It has been a quality of life issue for me. No more rushing to the bathroom I can be whenever I want to you and I know my bladder is empty. I went through one month of hell learning how to cath. now I have almost no problem the only problem I have is when I get hot then I can tell things. I wish you the best. Make sure you find a good urologist. Mine did the research for MS and Botox for the bladder.