I went off Beta last July, I had been on it about 8 years.
Used to be I had no side effects with it, and in recent years I started getting more of the flu like symptoms. That added to the fact I was having constant UTIs (and the fine print on Beta side effects says it could cause increase in infectons, plus about that time the study came out that said it did almost nil for disability, those who "partook" for years and those who didn't reached the same stage of disability at relatively the same time.) So I quit...and told my neuro I was.
We investigated some of the others, but ultimately didn't try any others because each would have possibly exacerbated some autonomic issues (BP and heart rate) I have from an MS lesion.
Since I stopped, I've not noticed any difference in physical symptoms, everything stayed about the same, but I'm not as foggy and I think my mood is "lighter." I wouldn't have said I felt depressed on the Beta...but I did feel sort of dull or flat, as far as emotions go.
So now waiting for the "wonder drug" to finally hit the market. As usual we seem to hurry up to wait
Makes me wonder if they'll be such a demand for that pill, that they'd have to go to a lottery system, like in the early days of Beta...but I'm sure they know there will be huge demand. The pricing will be interesting 
I'd probably be considered SPMS because it's always the same old same old symptoms, just a downward slide with them...but I think neuros like to keep you as RRMS so you do have access to the meds.
Used to be I had no side effects with it, and in recent years I started getting more of the flu like symptoms. That added to the fact I was having constant UTIs (and the fine print on Beta side effects says it could cause increase in infectons, plus about that time the study came out that said it did almost nil for disability, those who "partook" for years and those who didn't reached the same stage of disability at relatively the same time.) So I quit...and told my neuro I was.
We investigated some of the others, but ultimately didn't try any others because each would have possibly exacerbated some autonomic issues (BP and heart rate) I have from an MS lesion.
Since I stopped, I've not noticed any difference in physical symptoms, everything stayed about the same, but I'm not as foggy and I think my mood is "lighter." I wouldn't have said I felt depressed on the Beta...but I did feel sort of dull or flat, as far as emotions go.
So now waiting for the "wonder drug" to finally hit the market. As usual we seem to hurry up to wait
Makes me wonder if they'll be such a demand for that pill, that they'd have to go to a lottery system, like in the early days of Beta...but I'm sure they know there will be huge demand. The pricing will be interesting I'd probably be considered SPMS because it's always the same old same old symptoms, just a downward slide with them...but I think neuros like to keep you as RRMS so you do have access to the meds.
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