Novatrone is one of the treatments prescribed at the Center, but very sparingly and for those in a very steep decline. It would never be an option for me, as I have a heart arrhythmia.
And, since I last posted, everything has changed! I can't keep up with it. In my pre-cytoxan baseline exams with every specialty in the universe, it was revealed that one of the things causing my difficult speaking is a diminished lung capacity, which is being attributed 75% to MS and 25% to a curvature in my upper spine. Cytoxan can be toxic to lungs, and the neuros are thinking now it's not such a good idea.
So, we are going to do what we can do, which is 6 months of Tysabri, even though I am JC Positive. The risk of PML in JC positive is 1/1000 in the first year. I will take that risk, as my downhill slide seems to be getting a bit steeper, I am totally miserable, and will be very closely monitored.
Instead, we
And, since I last posted, everything has changed! I can't keep up with it. In my pre-cytoxan baseline exams with every specialty in the universe, it was revealed that one of the things causing my difficult speaking is a diminished lung capacity, which is being attributed 75% to MS and 25% to a curvature in my upper spine. Cytoxan can be toxic to lungs, and the neuros are thinking now it's not such a good idea.
So, we are going to do what we can do, which is 6 months of Tysabri, even though I am JC Positive. The risk of PML in JC positive is 1/1000 in the first year. I will take that risk, as my downhill slide seems to be getting a bit steeper, I am totally miserable, and will be very closely monitored.
Instead, we
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