Oh, Allyson, I am still in so much pain I could cry. I am still ramping up for 3 more days. I hope it kicks in to gear soon.
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GABAPENTIN - Anyone take it?
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I'm sorry is all I can say
I wish I could help or give you some great advice Lisa but all I can say is try calling your Doc. I hope you find some relief soon! Its never fun to feel all that pain
isamadjul
(allyson)DX 10/10, JCV postitive by a lot (said Nuero lol), Betaerson, Gilenya, Tecifidera, Aubagio now on Ocerevus
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I take 2700mg a day and have for years, I started taking it for my back pain and think it might have masked some of my MS symptoms and prolonged the DX. When I get the feeling that my face is sunburned I take an extra 600mg and it works well. I have never had any side effects but everyone is different
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Neurontin , aka , Gabapentin
My neurologist just started me on Gabapentin, aka, Neurontin. I have side affects but they are tolerable since I was told to take it at night 2 hours before bed and was told to make sure I get 8 hours sleep. Mine is for RLS, nerve jabs in my feet. Because of the RLS in both legs, dr thought it might help me get some sleep and to see if my forgetfulness,fog, and recall would come back. He thinks i am not getting the right sleep because of the nerve pain.
One week down and so far so good. Just wish the eye would get better. Hope this helps some.
Still in Limbo til DecSTR
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Today is my 5th day and I am gonna ask my Dr if I can take 2 per day rather than once at nite. He said to call if pain persists, so after the lunch hour I am calling.
Allyson, thanks.Dx: 2/3/12. 6-8 lesions right medulla/cervical spine. GLATIRAMER ACETATE 40 mg 1/19, medical marijuana 1/18. Modafinil 7/18, Women's multivitamin, Caltrate + D3, Iron, Vitamin C, Super B Complex, Probiotics, Magnesium, Biotin.
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LisaL77
I'm not your Doc but my Neuro had me up my 100mg a wk till I felt better...well not better you know what I mean . If it where ME I would up my dose until I was able to talk to my Neuro. Monday is far off if your in constant pain.
isamadjul
(allyson)DX 10/10, JCV postitive by a lot (said Nuero lol), Betaerson, Gilenya, Tecifidera, Aubagio now on Ocerevus
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Ahhh Allyson, one in the am and one in the pm now, feeling much better! Stuff is a miracle.Dx: 2/3/12. 6-8 lesions right medulla/cervical spine. GLATIRAMER ACETATE 40 mg 1/19, medical marijuana 1/18. Modafinil 7/18, Women's multivitamin, Caltrate + D3, Iron, Vitamin C, Super B Complex, Probiotics, Magnesium, Biotin.
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Yes, it is neurontin / gabapentin.
I am on 100 mg 3 x a day now. So groggy. I am concerned I will not be able to drive myself to work on Monday.Dx: 2/3/12. 6-8 lesions right medulla/cervical spine. GLATIRAMER ACETATE 40 mg 1/19, medical marijuana 1/18. Modafinil 7/18, Women's multivitamin, Caltrate + D3, Iron, Vitamin C, Super B Complex, Probiotics, Magnesium, Biotin.
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I took this cor most of my first year following dx. 3 or 4 times a day until I was having a flare & started forgetting to take it.
I was on it for headaches, constant low throb, not migraines. What I began to notice was that when I didnt take these pills, my headaches were vision blurring, mind numbing BAD.
I dis some research on the medication and was not thrilles with what I found out. I made an appt w my neuro to discuss this information, his solution was to increase my dosage.
I researched it some more when I got home and decided to stop taking it. After getting through a few days of horrible pain....I was fine. I still get the mild (ignorable) headaches fairly often but I can live with it. Taking a medication that causes far worse pain than what I am taking it for doesnt make sense to me, I found it frightening.DXd Fragile X premutation ~ 2004
DXd RRMS ~ Jan. 2009
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Neurontin
Hello again,
Had my Neuro up my Neurontin to 200mg and i still take it two hours before bedtime. It helps some. After about 5 hours of sleep I am wide awake and my leg is numb and tingling. I have to sit up for about an hour for the sx to get tolerable enough to get back to sleep. I will take this med dose until I see my Neuro in March. I read it takes a while to get into your system. I had my MRI today for dx of MS. My MS Neuro/Opthamologist ordered it. Looking for lesions. Regular neuro still says "possible". I am at my wits end but i see this is all to familiar territory for most of you. I too shall wait my turn for a dx. My ON is getting worse. When i have a bad day sx wise the ON is really noticable. My left lower quadrant in my right eye is not looking so good. My pcp said she will talk with my neuro to help me manage from her end. I do have cool drs who are trying to find what is wrong. Waiting is the worst.
Find it ... fix it. If it can't be fixed ... help me to live with it.STR
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