I recently found out that I will be discontinuing using Copaxone. I just don't understand why I can not donate my $$$$ expensive drugs to help another person with MS? Am I the only one who has found themself in this situation? What should I do with my boxes? Thank you for reading and hopefully answers.
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Why waste excellent drugs???
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Originally posted by Angela213 View PostI recently found out that I will be discontinuing using Copaxone. I just don't understand why I can not donate my $$$$ expensive drugs to help another person with MS? Am I the only one who has found themself in this situation? What should I do with my boxes? Thank you for reading and hopefully answers.
You might ask your neurologist's office or the local NMSS chapter for suggestions.
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BigA
Should you bump into someone at one of you MS meetings, you may find someone whose insurance has run out.
Note: this is not legal and you're on your own. My nurse told me that it costs them cents to make. I'd ask my doctor, but they probably can't take it because they have no way of knowing if it has been kept refrigerated or not.
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Curious?
Originally posted by Angela213 View PostI recently found out that I will be discontinuing using Copaxone. I just don't understand why I can not donate my $$$$ expensive drugs to help another person with MS? Am I the only one who has found themself in this situation? What should I do with my boxes? Thank you for reading and hopefully answers.
I'm starting on Copaxone today after not being on any meds since my dx Feb 2011. I have come to the conclusion maybe it will give me back some quality of life...
Just so tired of feeling crappy day in and day out. Sinus infection, tight neck/shoulders, muscle spasms, tension knots in neck, achy muscles, not able to relax.. stay tensed 24/7.. I do understand Copaxone may not help with those issues... but who knows..
Ms. Jay
Ms. Jay
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MSWorld Guideline#8:
PRESCRIPTION ITEMS: It is illegal to transfer prescription items such as medication or devices for injecting medication to someone other than the person for whom the prescription was written. Members are not allowed to offer to give or sell prescription medicines, devices, or any other types of prescriptions to others via MSWorld.
If you have leftover medication, please talk to your neurologist or your local MS Society. They may have a use for it.
I had leftover Rebif and Copaxone, along with their respective auto-injectors, that I donated to my neurologist's office for training purposes.
Be well,
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I also had left over Avonex and Copaxone before switching to Gilenya.
The NMSS could not take it, but I talked with my doctor at the Mellen Center (part of the Cleveland Clinic) and was told that I could donate the meds to the research department as long as they had been properly refrigerated.
You might want to see if there is a research department associated with your doctor's office.
Hope this helps.
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I had the same problem when I switched from Betaseron. I had extra that I was unable to use. I looked into a lot of options and made a lot of phone calls to doctors offices, pharmacies, etc, and finally found an idea that worked for me.
Could be, too, that some of the ideas I looked into that didn't work for me could work for you. My email address is in my profile, if you wish to email me for more info.
~ Faith~ Faith
MSWorld Volunteer -- Moderator since JUN2012
(now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08.
- Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
- Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
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When I stopped I had 3 months! its almost 10k in money! how can you throw that away?? I spoke to my neuro, who said he would take it. I spoke to the MS clinic who said they couldnt risk it as they would give out a new script. Couldnt see if I had stored this med properly and kept it cold or if I had allowed it to sit in the hot sun for months. UGH! So, I went to a local MS support group and asked if anyone else took my drug. Several did. I asked who had trouble making co pays, and one poor woman said she struggled each month to meet hundreds of dollars worth of co pays. After the meeting I spoke in private to her, and gave her the bag from the cooler in my car.
IF you cannot find someone to donate these too, please dispose of them properly. Giving them to a pharmacist to go to medical waste, or squirting them into coffee grounds and putting them into a closed baggie, or other things that prevent them from ending up in our ground water, or recirculating back into the main water treatment plant really helps. It amazes me when I see the tests of how many drugs are in our main water supply because folks flush them or wash them down the sink.RRMS 3/26/07
Beta 5/17/07
Copaxone 8/07/07
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