10 days ago, I had my 7th Ty infusion. Since the infusion, my legs have been much worse, along with my balance and equalibrium.
I don't dare close my eyes while standing, or my head spins and I feel like I am going to fall over.
Walking is a lot harder.
A week before the infusion, my legs actually felt a little stronger....just the opposite of what most people feel.
i don't know if this is a flare, or caused by the meds (Ty & Ampyra) or I am just getting worse. My MRI's a few weeks ago showed no new lesions. Maybe the ones I have are worsening.
The improvement before the last infusion was at 5 weeks , so I am delaying the next infusion by a week to see if the improvement occurs again.
i don't want to quit Ty, because it might be what is keeping no new lesions.
This just gets so confusing, and could be because of so many veriables.
I just don't know.
Thanks for an ear.
I don't dare close my eyes while standing, or my head spins and I feel like I am going to fall over.
Walking is a lot harder.
A week before the infusion, my legs actually felt a little stronger....just the opposite of what most people feel.
i don't know if this is a flare, or caused by the meds (Ty & Ampyra) or I am just getting worse. My MRI's a few weeks ago showed no new lesions. Maybe the ones I have are worsening.
The improvement before the last infusion was at 5 weeks , so I am delaying the next infusion by a week to see if the improvement occurs again.
i don't want to quit Ty, because it might be what is keeping no new lesions.
This just gets so confusing, and could be because of so many veriables.
I just don't know.
Thanks for an ear.
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