Just wondering if this forum is anything like the Nutrition and Supplements. Is there a Tara for this forum????
I'm the caregiver. We just finished the 6 month trial converting from Rebif to Gilenya. THANK YOU Oak Clinic, Green Ohio.
So far Zero side effects and NO FLU symptoms 3 times/week.
She is Spinal RRMS diagnosed 3.5 years back now but with symptoms for a year before that.
Her age is 48.
I think this is significant. Hysterectomy with both ovaries removed at around age 34. So it took around 10 years before the MS reared its head.
She has ongoing symptoms that I think are unrelated to her MS and more related to the Hysterectomy. During the past year we have titrated her off of a few fairly serious sctip addictions. But she still takes an anti depressant and Vicodin for back and general body pain.
And, she is a smoker. She has been able to quit fully 3 or 4 times now with two bouts using Chantix. Her MS developed soon after using this.
She is so immobile that I feel it makes this issue even worse. She could do more if the pain wasn't there.
The laundry list of symptoms are:
Severe lack of energy to the point she says it feels like she has sandbags weighting down her thighs.
Insomnia. She gets between 2 and 5 or 6 hours /night but seldom goes to sleep before 7:30 AM
Severe Pain. Full body pain. Might this be Fibro?
Loss of sensation in her feet.
Depression.
ZERO Libido.
I started researching this list on the internet. Starting with Female sexual dysfunction and what I found lead me to this conclusion.
There is an extremely strong correlation between the hysterectomy and MANY autoimmune diseases. MS is one.
The following link reinforces this: http://www.medhelp.org/posts/Multipl...is/show/747747
(I am going to check with the MS Society to see if there have been any studies concerning this.)
Somewhat scary but it's better to know what we are dealing with.
AND, there are several ways to reset the system so that these hysterectomy (especially ovary removal related changes) can be compensated for.
It sounds like what is missing from the system is Testosterone. Or, as the commercial for us guys coins it: "LOW T".
From what I've read online, reintroducing testosterone may alleviate most/ALL of the above symptoms including the depression.
The only possible negative that I can see could be an improved immune system. I will have to talk to her Neurologist before going any farther with this.
Now, the trick is how to do it CORRECTLY.
Has to be bioidentical. Can't be a patch as she is allergic to latex. I don't like the injection route as the dosing doesn't make sense and creates the usual side effects. Pill form is BAD for the liver. Sublingual is better but still bad for the liver.
I think I want to have her try a cream I found from Australia.
The plan will be to talk to her Neuro and GP to make sure this makes sense with them. We will need bloodwork to do this right.
I guess I would like to know if anyone out there has tried this and if so, what were the results????
Any input is appreciated.
Glyn!
I'm the caregiver. We just finished the 6 month trial converting from Rebif to Gilenya. THANK YOU Oak Clinic, Green Ohio.
So far Zero side effects and NO FLU symptoms 3 times/week.
She is Spinal RRMS diagnosed 3.5 years back now but with symptoms for a year before that.
Her age is 48.
I think this is significant. Hysterectomy with both ovaries removed at around age 34. So it took around 10 years before the MS reared its head.
She has ongoing symptoms that I think are unrelated to her MS and more related to the Hysterectomy. During the past year we have titrated her off of a few fairly serious sctip addictions. But she still takes an anti depressant and Vicodin for back and general body pain.
And, she is a smoker. She has been able to quit fully 3 or 4 times now with two bouts using Chantix. Her MS developed soon after using this.
She is so immobile that I feel it makes this issue even worse. She could do more if the pain wasn't there.
The laundry list of symptoms are:
Severe lack of energy to the point she says it feels like she has sandbags weighting down her thighs.
Insomnia. She gets between 2 and 5 or 6 hours /night but seldom goes to sleep before 7:30 AM
Severe Pain. Full body pain. Might this be Fibro?
Loss of sensation in her feet.
Depression.
ZERO Libido.
I started researching this list on the internet. Starting with Female sexual dysfunction and what I found lead me to this conclusion.
There is an extremely strong correlation between the hysterectomy and MANY autoimmune diseases. MS is one.
The following link reinforces this: http://www.medhelp.org/posts/Multipl...is/show/747747
(I am going to check with the MS Society to see if there have been any studies concerning this.)
Somewhat scary but it's better to know what we are dealing with.
AND, there are several ways to reset the system so that these hysterectomy (especially ovary removal related changes) can be compensated for.
It sounds like what is missing from the system is Testosterone. Or, as the commercial for us guys coins it: "LOW T".
From what I've read online, reintroducing testosterone may alleviate most/ALL of the above symptoms including the depression.
The only possible negative that I can see could be an improved immune system. I will have to talk to her Neurologist before going any farther with this.
Now, the trick is how to do it CORRECTLY.
Has to be bioidentical. Can't be a patch as she is allergic to latex. I don't like the injection route as the dosing doesn't make sense and creates the usual side effects. Pill form is BAD for the liver. Sublingual is better but still bad for the liver.
I think I want to have her try a cream I found from Australia.
The plan will be to talk to her Neuro and GP to make sure this makes sense with them. We will need bloodwork to do this right.
I guess I would like to know if anyone out there has tried this and if so, what were the results????
Any input is appreciated.
Glyn!
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