Neurontin

[chibi_polis]

While I was waiting to be seen by a neurologist. An ER doctor prescribed me Lyrica for the shocks. It didn't do anything but that symptom went away. Then a mth or so later my primary doctor prescribed me neurontin, 300mg 3 x a day.

I tried it...I slept all day, chest felt tight, i kept crashing into walls, and doorways. I couldn't walk right. I was dizzy and tired.

After I stopped taking it..I had vertigo for 2 mths. By then I saw my neuro. I got diagnosed. I have been getting mild shocks at least maybe 4 shocks total a day...but a lot of itching.

I was prescribed an allergy med by my primary. However my neuro wants me back on neurontin. I told him it was the devil. He said...no I should take it. 100 mg x 3 times a day.

Well I took it friday night. I went from itchies...to feeling numb (which I lost that symptom in may)...however it was my whole body..Then i got dry mouth and runny nose.. my muscles felt weak and stiff...and my right elbow hurts now..like its sore.

I don't want to take this crap. I rather peacefully scratch my face and arms... be able to walk normal. Would it be bad if I don't take it?

Is it really necessary to take it 3 times a day?

It made me feel worse than better.

[kbloom2]

Hello, I have to say you do not have to take any med your doc prescribes period. You know how it makes you feel don't take it. Be your advocate stand your ground. shame on the doc for telling you, you still need to take it.
Thats just my thoughts. Good Luck though
Kari

[terie-tk]

I recently tried Neurontin also

and I would say it was a disaster. My MD RX'd it for nerve pain and I took it --300mg, the first dose went fine--- just numbed the pain though, I was a little drowsy and a little light headed but I know this can go away as you take it more regularly.

Well the more doses I took (never made it up to 3x day), I became totally non-functional. Drowsiness that persisted even after the medication should have worn off--- it has taken days to get back to normal from my 5 day trial of Gabapentin(Neurontin) --

So back to nerve pain and may ask MD for a different med...but I'm a little hesitant to try any more new meds after that experience , I may just deal with the pain a little longer.

[salamandertom]

If you don't like it don't take it and tell your doctor you need to try something else - PERIOD. You are your own advocate - HUGS.

[stalo]

Neorontin was good for me but it sounds to me like you and it do not get along. DO NOT TAKE IT!!! Tell him to find something else to treat your symptoms!

[twisterred]

I'm not telling you to stay with Neurontin, but this new standard 300 mg dose really bothers me.

My DR years ago prescribed only 100 mg and it helps me.
I've taken that 2-3 times a day for years.

A fellow MS friend diagnosed after me mentioned the 300 mg of neurontin 3 times a day was making her crash into the walls.

I'd be a zombie with that dosage, too!

So, maybe your dosage is too much?

Don't take what you have right now.

[terie-tk]

My neuros starting dose...

I'm not telling you to stay with Neurontin, but this new standard 300 mg dose really bothers me.

was 1-2, three times daily- of the 300mg caps

Thank goodness I knew better than to take 2 for the first dose.
Just 1 was really too much as I said in my above post it seemed to stay in system even 16-18 hrs later.

So I don't know if I should ask for 100mg dose or not. I see so many posts of people who have liked the medication.

So I agree and question that standard 300mg dose ...

[twisterred]

So I don't know if I should ask for 100mg dose or not. I see so many posts of people who have liked the medication.

So I agree and question that standard 300mg dose ...

100 mg 2-3 times takes away Neuropathic pain for me. It helps me sleep at night and lessons the tingling nerve pain I feel when awake.
A cup of coffee or two and I'm OK.
(Provigil used to really help, but it's not an option to counter act the slight drowsiness I have from it.)


200 mg puts me to sleep for sure when I am in pain and need to "escape" for a couple of hours.
It does put me to sleep, but that's what I want it to do.

300 mg per day is VERY different than 900 mg per day, that's for sure.

If you do consider it, don't let your Dr tell you 100 mg won't help. The Dr that got me started on this routine had been an MS specialist for over 20 years (That helped me trust his prescription).

Best wishes!!

Best wishes with your decision.

[Waydwnsouth1]

I do not know what I would do without my neurontin. I take 300mg in the morning, 300 mg in the afternoon, and 600 mg in the evening. It has really helped me with the sharp shooting pains I was having. I still get them but just not as bad and not as frequent. My PCP tried me on Lyrica first. Not only was it more expensive but it did nothing for me.

But like a couple of posters have said, if the drug does not work for you do not take it and ask for something different.

[Skinny]

I cant take Nerontin at all or anything like it... It makes me crazy and I see things..1st time there were black birds in my room dive boming me.. thought hubby was going to have me comitted I told the Dr's sence that NO way! i wont go near the stuff.
I need something for the shocking and burning and sometimes feels like I am walking on glass however there isnt anything I found yet to take to help it.
But yes! Dont take any meds that make you feel bad YOU are in control of your health care. You are the Boss! Not the Dr's!!!!

[dann]

less is better for me

Have been taking 100 mg of neurontin at night..... sometimes throw bufferin in for good measure -- works great for me - don't like meds at all so only take what is absolutely necessary and only if it is beneficial!

[iputaspllonu]

gabapentin blues

Hello,

I'm new to this group, I'm being diagnosed for MS, however so far there are more tests and medication than answers. At first I was on 300 mg three times a day, symptoms didn't change so of course the doctor upped the amount to 600 mg three times a day. Well then the weight gain started. I've been taking this amount since early May, (30 pounds ago). I started a weight loss program, stuck to the amounts and types of food religiously and gained 2.5 pounds my first week. The doctor wants to continue this treatment plan until November, how much will I weigh then?

[Leonaob]

I just left my doctor today. I was taking 200 mg 2x a day and then 400mg at night, it has completely stopped working for my headaches. I was on amlitriptaline (?) and it just made me fat overnight no help with headaches. Today she prescribed Topamax..so we shall see. But overall the neurotin didn't have any noticeable side effects for me.

[mtnwillow]

I started with 100 mg daily then increased to 200, then 300. In the beginning it did make me sleepy hence the tapered dose. I currently take 300 mg in the morning and 600 mg at bedtime. It helps the pain and twitching. I can tell if I miss a dose.

[DianeD]

Interesting

You mention taking Lyrica with no results; for me the Lyrica was awful. I felt just as you described with Neurontin.

I won't take the Lyrica.. It is your decision whether to take the Neurontin. It isn't the doc who is feeling your symtoms; it's you. I wonder how much work the doc could do if he felt like you do.

Diane