I just got approved for disability (first time applied). It only starts in October. Medicare dosen't start till 2 years later. The money I get for disability barely covers my house payments and other bills much less me getting insurance. I'll making half of what I made a year when I worked . My prescriptions with co-pay runs around $2,000 a year. So now what, stop taking my pills so I can eat. I already had to give up driving because of MS what else???? Where do I turn to for help, I don't know where to go or what to do???? I don't know what my options are?????
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Apply for Medicaid as soon as you can. Because you have already been determined as disabled, Medicaid can't turn you down for that reason. However, depending on whether you get family coverage (with children) or disability coverage, you may have something called a spenddown, which would be like a monthly deductible you would have to meet, but you won't know until you try. Since Illinois covers parents up to a certain percent of the poverty level, I'm covered through the family plan, but I also have SLMB, where Medicaid covers all of my copays and expenses outside of Medicare.Diagnosis: May, 2008
Avonex, Copaxone, Tysabri starting 8/17/11
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Prescription Assistance & Real Estate tax Homestead reduction
Please look on your county auditor's website, or phone their office regarding the real estate tax homestead reduction which will reduce your real estate tax. If they don't have the info when you phone, google it for your county to see if your county offers the homestead real estate tax reduction. Also check on any life insurance policies that you may have, some have reduced premiums for sickness. Below is a very helpful post from Victor on the MS World board. Also google medical assistance for your state. Some states offer different helpful medical assistance programs. I know this isn't a defined helpful answer. Phone your county for their office which lists befefits it has available for you. The MS Association website has cooling equipment and other equipment and helpful information. You can google their website for info. You can also google to see if they have an organization near your residence
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PRESCRIPTION ASSISTANCE AND FUNDING
(originally compiled by Victor H)
MS TREATMENT PAYMENT ASSISTANCE
Biogen MS Active Source (Avonex, Tysabri): (800) 456-2255
Serono MS Life Lines (Rebif): (877) 447-3243
Teva Shared Solutions (Copaxone): (800) 887-8100
Bayer MS Pathways (Betaseron): (800) 788-1467
Novartis Patient Services (Gilenya): (877) 408-4974
GENERAL FINANCIAL ASSISTANCE
Botox Assistance Program: (800) 44-BOTOX, Option 4
N.O.R.D. Co-Pay Assistance (800) 634-7207
N.O.R.D. Medicare Co-Pay Help: (866) 924-0100
Acorda (Zanaflex): (800) 464-0097
Cephalon (Provigil): (800) 675-8415
Medtronic (Baclofen): (800) 999-6673
Questor (Acthar gel steroid): (888) 435-2284
Montel Williams MS Foundation: (888) 324-2773
Partnership For Perscription Assistance: (888) 477-2669
Roche (Klonopin): (800) 285-4484
Pfizer (Nerontin, Zolof) (800) 707-8990
Novartis (Tegretol) (800) 257-3273
GlaxoSmithKline (Wellbutrin): (866) 728-4368
Wellness 2 Wellness: (866) 317-2775
Together RX Access, LLC: (800) 444-4106
The Commonwealth Fund: (212) 606-3800
Johnson Ortho Patient Assistance Foundation: (800) 652-6277
The Medicine Program (800) 921-0072
NeedyMeds: (978) 865-4115
National Organization of Rare Disorders (NORD): (203) 744-0100
Rx Council (866) 794-3571
Alternative Funding Group (866) 426-2906
Patient Access Network (866) 316-7261
Bridges to Access (866) 728-4368
Rx Outreach (800) 769-3880
ADDED 2-12-09:
HealthWell Foundation - (800) 675-8416
FamilyWize - (800) 222-2818
Rx Assist - (401) 729-3284
RX Hope - (732) 507-7400
Chronic Disease Fund - (877) 968-7233
The Access Project - (800) 367-2437
Eye Care America - (415) 561-8518
For help with Assistive Technology Alternative Financing Programs:
http://www.msworld.org/forum/showthread.php?t=109171
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Originally posted by Marie12 View PostPlease look on your county auditor's website, or phone their office regarding the real estate tax homestead reduction which will reduce your real estate tax. If they don't have the info when you phone, google it for your county to see if your county offers the homestead real estate tax reduction. Also check on any life insurance policies that you may have, some have reduced premiums for sickness. Below is a very helpful post from Victor on the MS World board. Also google medical assistance for your state. Some states offer different helpful medical assistance programs. I know this isn't a defined helpful answer. Phone your county for their office which lists befefits it has available for you. The MS Association website has cooling equipment and other equipment and helpful information. You can google their website for info. You can also google to see if they have an organization near your residence
-------------------------------------------------------
PRESCRIPTION ASSISTANCE AND FUNDING
(originally compiled by Victor H)
MS TREATMENT PAYMENT ASSISTANCE
Biogen MS Active Source (Avonex, Tysabri): (800) 456-2255
Serono MS Life Lines (Rebif): (877) 447-3243
Teva Shared Solutions (Copaxone): (800) 887-8100
Bayer MS Pathways (Betaseron): (800) 788-1467
Novartis Patient Services (Gilenya): (877) 408-4974
GENERAL FINANCIAL ASSISTANCE
Botox Assistance Program: (800) 44-BOTOX, Option 4
N.O.R.D. Co-Pay Assistance (800) 634-7207
N.O.R.D. Medicare Co-Pay Help: (866) 924-0100
Acorda (Zanaflex): (800) 464-0097
Cephalon (Provigil): (800) 675-8415
Medtronic (Baclofen): (800) 999-6673
Questor (Acthar gel steroid): (888) 435-2284
Montel Williams MS Foundation: (888) 324-2773
Partnership For Perscription Assistance: (888) 477-2669
Roche (Klonopin): (800) 285-4484
Pfizer (Nerontin, Zolof) (800) 707-8990
Novartis (Tegretol) (800) 257-3273
GlaxoSmithKline (Wellbutrin): (866) 728-4368
Wellness 2 Wellness: (866) 317-2775
Together RX Access, LLC: (800) 444-4106
The Commonwealth Fund: (212) 606-3800
Johnson Ortho Patient Assistance Foundation: (800) 652-6277
The Medicine Program (800) 921-0072
NeedyMeds: (978) 865-4115
National Organization of Rare Disorders (NORD): (203) 744-0100
Rx Council (866) 794-3571
Alternative Funding Group (866) 426-2906
Patient Access Network (866) 316-7261
Bridges to Access (866) 728-4368
Rx Outreach (800) 769-3880
ADDED 2-12-09:
HealthWell Foundation - (800) 675-8416
FamilyWize - (800) 222-2818
Rx Assist - (401) 729-3284
RX Hope - (732) 507-7400
Chronic Disease Fund - (877) 968-7233
The Access Project - (800) 367-2437
Eye Care America - (415) 561-8518
For help with Assistive Technology Alternative Financing Programs:
http://www.msworld.org/forum/showthread.php?t=109171
MS Jay
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