Announcement

Collapse
No announcement yet.

Four types of SPMS and their different treatment styles

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Four types of SPMS and their different treatment styles

    https://www.webmd.com/multiple-scler...atment%20style.

    I found this article helpful. It lists four types of SPMS:
    • Active SPMS
    • Active-Progressing SPMS
    • Non-Active Progressing SPMS
    • Stable SPMS


    I think I've either been in, or transitioning to SPMS for about 4-5 years. Actually, I believe I'm there.

    I used to dread it, but, for me, it currently isn't that bad. Initially, I noticed a lot of progression (Non-Active Progressing SPMS). But, currently, for about the past two years, I've been stable (Stable SPMS), much more stable than I often was in the past -- probably because of alternative things I'm doing to remain as healthy as I can.

    I haven't had an MS flare since 2014; it's good to know that those are likely in my past rather than in my present and my future.
    Last edited by Mamabug; 08-28-2020, 01:12 PM. Reason: Skipped a word
    ~ Faith
    MSWorld Volunteer -- Moderator since JUN2012
    (now a Mimibug)

    Symptoms began in JAN02
    - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
    - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
    .

    - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
    - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

    #2
    Thanks for the article, Mamabug.

    Very interesting about how the treatment protocol can change, which is dependent on the behavior of SPMS.
    PPMS for 22 years (dx 1998)
    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

    Comment


      #3
      Originally posted by Mamabug View Post
      I haven't had an MS flare since 2014; it's good to know that those are likely in my past rather than in my present and my future.
      Hi Mamabug.

      Nice to hear you haven't had a relapse in 6 years I would think most of us that started out as RR appreciate going a long time without a relapse. Unfortunately, it is possible to have relapses when SP

      I was officially changed to SP in 2013 and I have had 2 relapses in that 7 years of "officially" being put in that category. I recovered a bit more slowly and do have residual from the 2 relapses.

      I am hoping you do not experience any relapses and remain stable for the rest of your journey with this disease. BTW, even with the 2 relapses I am considered stable.
      Diagnosed 1984
      “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

      Comment


        #4
        Originally posted by SNOOPY View Post
        ... Unfortunately, it is possible to have relapses when SP

        ...I am hoping you do not experience any relapses and remain stable for the rest of your journey with this disease. BTW, even with the 2 relapses I am considered stable.
        Yes; it's possible to have relapses when SP; that's part of what my link says.

        Hmmm; perhaps your neuro considers you stable even with relapses? That's different than the way the article defines stable SPMS. According to the info in the link, your SPMS would be one of the active types. They are the two types that include relapses.

        I wonder if the type of SPMS that we experience remains the same once we reach it, or if it could change over time. I don't know anything about that. but that's what my SPMS seems to have done.
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
        .

        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

        Comment


          #5
          My MRIs have shown less lesions with no new activity for quite some years, Neurological exam remains unchanged. I take one medication for MS (Gabapentin 300mg 2x a day). I still see benefits/improvements with PT and exercise.

          Both relapses appeared to be connected to a current health issue. 2015 I had a cyst on the white part of my eyeball which needed to be surgically removed, at the same time I developed INO. 2020 I had a knee replacement and a few days after surgery I had numbness in both index fingers and thumbs.
          Diagnosed 1984
          “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

          Comment


            #6
            Originally posted by KoKo View Post
            Thanks for the article, Mamabug.

            Very interesting about how the treatment protocol can change, which is dependent on the behavior of SPMS.
            Yes; that's what drew me to the article. Based on his own research, my functional medicine doctor recommended that I talk to my MS specialist about tekfidera. I assumed that made sense because it could be used to treat SPMS.

            When I discussed it with her, she said it wouldn't help me because I wasn't having flares and my MRI confirmed no new lesions.

            I did some searching after I got home and found this article. It confirmed what my MS specialist said.
            ~ Faith
            MSWorld Volunteer -- Moderator since JUN2012
            (now a Mimibug)

            Symptoms began in JAN02
            - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
            - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
            .

            - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
            - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

            Comment

            Working...
            X