My best friend my sister was diagnosed at 23.. She's 30 and the decent from an average girl who stumbled every now and again to the wheel chair bound, the state she's in now...bowl control and bladder infections and temporary loss of site at times, scatter brained, daily injections that aren't doing enough, stays in the hospital to do intense steroid therapy that used to put her back on her feet and now they can't keep doing them not at the rate she would need and its not working the same.
Ive been told life expectancy is pretty similar to anyone else. Ive researched and researched made myself nuts and her progression i mean this thing has just taken her.
all the research says most people and "unless its severe" ... She told me it wasn't severe... Thats not true is it? I just wanna know know the truth. It is severe? this is the rare instance right? someone tell me the truth please.
Ive been told life expectancy is pretty similar to anyone else. Ive researched and researched made myself nuts and her progression i mean this thing has just taken her.
all the research says most people and "unless its severe" ... She told me it wasn't severe... Thats not true is it? I just wanna know know the truth. It is severe? this is the rare instance right? someone tell me the truth please.
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