Dear people,
after 3 years (visiting several neuro’s, some specialist in ms) i still have nog diagnose....had several mri’s and one LP. Mri’s showing in head 2 frontal "non specific” lesions (no MS says ms-neuro) and one at c4-c5, also “something unidentified”, but no MS lesion says ms-neuro. In his report he reported a “syrinx”, but i dont know he is right. Last mri was a Tesla 3.0.
Lp showed an slight elevated s-100 protein (3.9) and my “total protein” was 445, against the limit of 450. No specific o-bands and mbp/gfap/igg-index where normal.
The cervical lesion was not present in jan 2017, but in nov 2018 showed this kind of syrinx.
i have many problems, muscle tightness/pain/pricking (mainly legs), swallowing problems, cold hand/feet, pain neck, bowel en bladder problems, sore tongue etc.
what to do? Pfff....thanks for answers
after 3 years (visiting several neuro’s, some specialist in ms) i still have nog diagnose....had several mri’s and one LP. Mri’s showing in head 2 frontal "non specific” lesions (no MS says ms-neuro) and one at c4-c5, also “something unidentified”, but no MS lesion says ms-neuro. In his report he reported a “syrinx”, but i dont know he is right. Last mri was a Tesla 3.0.
Lp showed an slight elevated s-100 protein (3.9) and my “total protein” was 445, against the limit of 450. No specific o-bands and mbp/gfap/igg-index where normal.
The cervical lesion was not present in jan 2017, but in nov 2018 showed this kind of syrinx.
i have many problems, muscle tightness/pain/pricking (mainly legs), swallowing problems, cold hand/feet, pain neck, bowel en bladder problems, sore tongue etc.
what to do? Pfff....thanks for answers
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