Hi! I'm new here! My general practitioner referred me to a neurologist about a year ago with a laundry list of symptoms- memory and cognitive issues, tingling, numbness, and fatigue. My initial MRI showed several non-specific white matter lesions, which were not in a typical "MS pattern" but only being 34 years old, my neuro said I was 25-30 years too young for these to be normal. From there, I had a LP, revealing 3 o-bands, which he said was one short of the diagnosis requirement.
I've gone through a million other tests, ruling out everything from peripheral neuropathy to SLE, so he wanted me to return for another round of MRI's in six months, which is now only a week away. Over the last few months, I've really tried not to focus too much on what seem like new symptoms- a tremor in my left arm when I straighten it or reach for things, tripping over my own feet or up the stairs, horrendous snoring / gasping in my sleep that is disturbing my poor husband, but the night before last I had something happen that totally freaked me out and I am just curious if anyone else has experienced this? I woke up in the middle of the night with my right arm totally dead from the shoulder down, which is a regular occurrence for me, so I used my left arm to pushed myself up and roll over, but when I made it to my back, my right hand started flailing around on its own- kind of like it was possessed- I grabbed it and held it still with my left until it finally stopped, but it was disturbing to say the least! Has anyone else had this happen?? As much as no one wants to hear that they have MS, I feel like clearly SOMETHING is very wrong and I just want to know what this is.
I've gone through a million other tests, ruling out everything from peripheral neuropathy to SLE, so he wanted me to return for another round of MRI's in six months, which is now only a week away. Over the last few months, I've really tried not to focus too much on what seem like new symptoms- a tremor in my left arm when I straighten it or reach for things, tripping over my own feet or up the stairs, horrendous snoring / gasping in my sleep that is disturbing my poor husband, but the night before last I had something happen that totally freaked me out and I am just curious if anyone else has experienced this? I woke up in the middle of the night with my right arm totally dead from the shoulder down, which is a regular occurrence for me, so I used my left arm to pushed myself up and roll over, but when I made it to my back, my right hand started flailing around on its own- kind of like it was possessed- I grabbed it and held it still with my left until it finally stopped, but it was disturbing to say the least! Has anyone else had this happen?? As much as no one wants to hear that they have MS, I feel like clearly SOMETHING is very wrong and I just want to know what this is.
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