My story started 2 1/2 years ago burning painful feet - foot doctor dx plantar fasciitis with idiopathic neuropathy. At my worst I had numbness, burning, tingling up to my waist. -painful to even have clothes on. My legs were extremely heavy - my muscles so tight. I would feel shocks in my feet and ankles with movement. Facial numbness- my chin mostly. I changed pcp's and was prescribed cymbalta- it has been a game changer- heaviness and muscle tightness improved- pain improved. 6 months ago I experienced foot drop and balance problems. - new pcp sent me to a new neurologist (my third). Neurologist sent me for all thestandard tests. No Lyme , no cancer, no diabetes,. He sent for an MRI which showed many spots.
"Numerous subcentimeter foci of increased T2 signal identified in the white matter of the centrum semiovale and corona radiata bilaterally. Possible etiologies include microvascular ischemic changes and vasculopathy. The appearance is somewhat atypical for multiple sclerosis."
i had had a spinal tap - it ended up being a tramatic tap - protein slightly elevated but a wash because of red blood cells. Tap came back with 1 band - also negative for Lyme and all all other virus.
I tested positive for for small fiber neuropathy- by skin biopsy.
On neuro exam I have full strength - reflexes are increased - flunked Romberg- I was not able to Remember the 3 words. - he tried 3 times. - I've been saying I have memory problems for a few years - and cognitive problems - reading directions- my penmanship has gone to hell - I can only print - it's the weirdest thing.
so so neuro has said I'm too healthy to have the problems I have. He sent me to an Ms specialist 2 weeks ago - and neuro feels beginning stages of possible Ms- Ms specialist isn't sure I don't exhibit the standard symptoms. Neuro said if Ms specialist agrees I should do a 5 day course of steroids - which I did do -Ms specialist said it could be CIPD Chronic inflammatory demyelination poly neuropathy. Ms specialist and neur are suppose to talk . I have an appointment with Neurologist the first week in February.
Im in limbo- it's okay. At this moment I'm feeling good and I'm not in pain. Coming off the steroids was difficult - my balance was off - I couldn't complete a thought - I tire easily now. So, I wait - is it MS?
"Numerous subcentimeter foci of increased T2 signal identified in the white matter of the centrum semiovale and corona radiata bilaterally. Possible etiologies include microvascular ischemic changes and vasculopathy. The appearance is somewhat atypical for multiple sclerosis."
i had had a spinal tap - it ended up being a tramatic tap - protein slightly elevated but a wash because of red blood cells. Tap came back with 1 band - also negative for Lyme and all all other virus.
I tested positive for for small fiber neuropathy- by skin biopsy.
On neuro exam I have full strength - reflexes are increased - flunked Romberg- I was not able to Remember the 3 words. - he tried 3 times. - I've been saying I have memory problems for a few years - and cognitive problems - reading directions- my penmanship has gone to hell - I can only print - it's the weirdest thing.
so so neuro has said I'm too healthy to have the problems I have. He sent me to an Ms specialist 2 weeks ago - and neuro feels beginning stages of possible Ms- Ms specialist isn't sure I don't exhibit the standard symptoms. Neuro said if Ms specialist agrees I should do a 5 day course of steroids - which I did do -Ms specialist said it could be CIPD Chronic inflammatory demyelination poly neuropathy. Ms specialist and neur are suppose to talk . I have an appointment with Neurologist the first week in February.
Im in limbo- it's okay. At this moment I'm feeling good and I'm not in pain. Coming off the steroids was difficult - my balance was off - I couldn't complete a thought - I tire easily now. So, I wait - is it MS?
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