Is this MS? your opinion matter to me! :)

[JourneyGuy]

Hey guys!
My name is mario and i just turned 29 this year.
ive been healthy all of my life. but things changed a bit.. since last year.
im gonna try to be brief also my first lenguage is spanish so ill try my best to explaing myself and symptoms in english.

This year on February to be exact..
i woked up with loud ringing in my left ear.
being a concert and music lover, i was not a stranger to tinnitus.
but it used to happen after a show, and this had no reason to happen.
at first they thought it was my eustachian tubes, then hearing loss.
i took a test and my hearing was perfect, just a little low on the lower frencuencies (but still in the normal ranges) my doctor suggested that my tinnitus comes from a endolymphatic nature... meniers, endolymphatic hydrops etc.. was mention. but i havent had other symptoms just tinnitus so... he order and MRI and other studies that i havent get.
my tinnitus is constant, used to drive me crazy, i have manage it so far, ive been skipping social events, loud concerts and salt, sugar and MGS (this substance spike my tinnitus)

also... a few days after my tinnitus started i begin to notice floters in my vision i used to have them..but this are like big or more.. i notice them a lot when im around bright enviroments, in the night... bright lights bother me, i also notice snow vision, when i open or close my eyes slightly i dont know how constant it is... but i guess its very constant... im a graphic designer and i work with my laptop all day.. so im not sure if im hurting my eyes even more... i have seen some dark or black spots around my vision, never in the center or my vision... very brief... it only happend twice in this past 9 months.
this could be optical neuritis... or maybe my vision playing up, i have read that people with tinnitus have hyperactivity in the brain wich causes vision issues too.
the one that scared me the most.. is one day that i slept late, and i woke up during the middle of the night and when i opend my eyes i was seeing weird stripes or dots patterns like.. when you close your eyes and have visual hallucionations.

i have had also some joint pain...
this usually comes and goes...
and i have notice some pain in my left knee.
and it usually happens right after i wake up... i mean... during the day it might hurt then i go to sleep and the next morning is gone.. then 2 weeks laters i go to bed and its back!
but its usually mild.
but it scares me, cause it seems like sleeping resets this pain, my body pain is every where :/
left knee, right knee, other joint areas in my arms, my neck, my hand, my jaw.. the most painful have been my jaw it did hurt when i was trying to bite my meal.
so for 4 days i was having a hard time biting my food.

mild headaches. ( i had a migraine last year )
some tingling, burning, itching but no numbess...around my arms, hands, fingers, feet and legs.
(i hurted my left arm in this past months and thats where i feel the tingling, itching more but i know this is because i might hurted something) and to be honest the tingling happens when im doing a certain position. like writing in bed on my laptop or crossing my legs, etc.

i have had 2 episodes where i woked up very quickly and i was a bit dizzy, but to be honest it was mild and doesnt last longer.

i have had some fast heart beating (but this started a few months ago..)
i think i might have a mild postural orthostatic tachycardia syndromebut im not sure.

and thats it.

im kinda scared it could be MS, since my mother had transverse myelitis.
it just adds fuels to my anxiety.

i went to a good neurologist and he told me not to worry about MS and told me it was unlikely.
im getting and MRI soon, but just wanted you opinion too

there a few other health issues i have are .. sleep apnea and candida.
im a overweight ... about 30 pounds.
and i think my cholesterol might be out of control.

thank you so much


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[JourneyGuy]

i wanted to add!
that i have had a little of spams too.
but very mild.
and a few days ago something very weird happends.
a friend of mine had been chewing mint gum (but a lot )
and then she kissed my cheek and i could felt that all of that area becaming very cold and everything smells like mint.
it was pretty odd...

[jamilea]

Hi Journeyguy, welcome! At first glance, it does not sound like an MS pattern to me, but I am not a doctor. I recommend continuing the testing with your doctor to see what is causing your symptoms that you have now. In the meantime, try not to go on a Dr. Google quest. It will only compound the anxiety and cause more symptoms. Trust me. Take good care of yourself. Everyone needs proper hydration, sleep, good food, and exercise. Best wishes to you!

[JourneyGuy]

Also, another thing to add, is that my hands get tired very quickly when writing, or painting.
im graphic designer i have notice that too.
i dont know if im experiencing a poor ciruculation.
that would explaing why my arms or legs go numb very quickly when changing a postion.
:/

[jamilea]

Also, another thing to add, is that my hands get tired very quickly when writing, or painting.
im graphic designer i have notice that too.
i dont know if im experiencing a poor ciruculation.
that would explaing why my arms or legs go numb very quickly when changing a postion.
:/

That happens to me even with stirring things awhile while cooking and I'm 32.

Have you had your lumbar area checked out with regards to the numbness with positions?

[JourneyGuy]

That happens to me even with stirring things awhile while cooking and I'm 32.

Have you had your lumbar area checked out with regards to the numbness with positions?

My lumbar area?
mmm nooo what does that mean?
is is something related to MS?
or are you saying that the "quickly numbness" is some kinda normal?

[Mamabug]

... my doctor suggested that my tinnitus comes from a endolymphatic nature... meniers, endolymphatic hydrops etc.. was mention. but i havent had other symptoms just tinnitus so... he order and MRI and other studies that i havent get...

I went to a good neurologist and he told me not to worry about MS and told me it was unlikely.
im getting and MRI soon, but just wanted you opinion too

...

My advice is to listen to your neurologist, get your MRI, have the possible tinnitus checked out, etc.

I usually tell people that, because MS is neurological and the brain controls everything, any symptoms could be MS. But, there are many neurological diseases, many illnesses that mimic MS, etc. MS often takes a long time to diagnose because it can involve ruling out many other possibilities.

When just reading through your symptoms, MS wouldn't be the first thing I would guess. It often presents differently, and, usually not at such a young age. But, like I said, anything could be MS.

Limbo is a difficult place to be, but, that's where you are. Just try to go with the flow as much as you can. Diagnosis could be a long journey and you don't want to spend it stressing. You'll do better if you conjure up your patience and expect that your good neurologist will be a good diagnostician and will carefully consider symptoms and test results and will come up with an accurate diagnosis that won't take too long.

Although some people are diagnosed more quickly, it took almost two years before I had an accurate diagnosis. I was first diagnosed with a "probable stroke" by my neurologist. Then, he ruled out that, and lots of other things. Later, I was diagnosed with "probable central nervous system lupus" by Mayo Clinic. And, finally, after multiple flares, 7 MRI's (which changed in appearance over time) and many other tests, my neurologist was able to give me an accurate diagnosis. Eventually, I switched to an MS Specialist because my MS was somewhat out of control and she was able to treat it more effectively.

In my case, MS was never ruled out, right from the beginning, and was considered a possibility. If your neurologist says it's unlikely, then, ... it's probably unlikely.

In the future, if the diagnosis seems to take too long, you could consider consulting an MS Specialist. If it's not MS, a specialist may be able to rule that out sooner.

[JourneyGuy]

Hey mamabug!
thank you so much for your advice!! very appreciated.
im gonna get my MRI test done next week.
to be honest my symptoms are not awful or difficult.
just little pain in different areas.
like right now... i usually woke up with the "pain or sensation" and it goes away after.
right now my left hand feels weird and my right leg too..
i have heard that MS doesnt work that way, i mean because of the body how it is wired.
it only affects one part at the time and not the whole body? am i right??

also to ad more fuel to my anxiety,
my mother had transverse myelitis... but to be honest i dont think she had MS, Before or after the transverse myelitis.

so ive been thinking that i might be developing transverse myelitis... but that wouldnt fit the criteria.

limbo land is like the twilight zone hahaha
thank you for reading!!

My advice is to listen to your neurologist, get your MRI, have the possible tinnitus checked out, etc.

I usually tell people that, because MS is neurological and the brain controls everything, any symptoms could be MS. But, there are many neurological diseases, many illnesses that mimic MS, etc. MS often takes a long time to diagnose because it can involve ruling out many other possibilities.

When just reading through your symptoms, MS wouldn't be the first thing I would guess. It often presents differently, and, usually not at such a young age. But, like I said, anything could be MS.

Limbo is a difficult place to be, but, that's where you are. Just try to go with the flow as much as you can. Diagnosis could be a long journey and you don't want to spend it stressing. You'll do better if you conjure up your patience and expect that your good neurologist will be a good diagnostician and will carefully consider symptoms and test results and will come up with an accurate diagnosis that won't take too long.

Although some people are diagnosed more quickly, it took almost two years before I had an accurate diagnosis. I was first diagnosed with a "probable stroke" by my neurologist. Then, he ruled out that, and lots of other things. Later, I was diagnosed with "probable central nervous system lupus" by Mayo Clinic. And, finally, after multiple flares, 7 MRI's (which changed in appearance over time) and many other tests, my neurologist was able to give me an accurate diagnosis. Eventually, I switched to an MS Specialist because my MS was somewhat out of control and she was able to treat it more effectively.

In my case, MS was never ruled out, right from the beginning, and was considered a possibility. If your neurologist says it's unlikely, then, ... it's probably unlikely.

In the future, if the diagnosis seems to take too long, you could consider consulting an MS Specialist. If it's not MS, a specialist may be able to rule that out sooner.

[Mamabug]

Hey mamabug!
thank you so much for your advice!! very appreciated.

You're welcome. This site helped me, so much, too, when my symptoms were new and I didn't have a diagnosis yet.

im gonna get my MRI test done next week.
to be honest my symptoms are not awful or difficult.
just little pain in different areas.
like right now... i usually woke up with the "pain or sensation" and it goes away after.
right now my left hand feels weird and my right leg too..

Good. Hopefully, the MRI will give your neuro some useful information. But, my neuro initially said, "Lots of things can mimic a stroke." Later, he said, "Lots of things can mimic MS." And, so it goes with many neurological illnesses. Their symptoms mimic each other; that's part of what makes diagnosis long and difficult.

i have heard that MS doesnt work that way, i mean because of the body how it is wired.
it only affects one part at the time and not the whole body? am i right??

I don't know, honestly. That's so difficult for me to answer because MS can present very differently in different people.

also to ad more fuel to my anxiety,
my mother had transverse myelitis... but to be honest i dont think she had MS, Before or after the transverse myelitis.

so ive been thinking that i might be developing transverse myelitis... but that wouldnt fit the criteria.

One thing to think about, although I don't think this thought will get you any closer to knowing what you have. But, it is possible that transverse myelitis, like MS, is an auto-immune disease. It tends to be a pattern, that if family members have an auto-immune disease, it puts you at higher risk of also developing one.
And, if you already have one auto-immune disease, it puts you at higher risk of developing another one.
In my family, there are 3 of us siblings. I have MS. My brother has Type I diabetes and a thyroid condition. My sister also has Type I diabetes and something thyroid. Her daughter has something thyroid and her son has Type I diabetes. My daughter has severe eczema. My son and my brother's daughter have not, yet, developed any auto-immune diseases.
So, between the 8 of us (us 3 siblings and our 5 children), there are 8 auto-immune diseases.

I tell you this because, whether what you have is MS, transverse myelitis, or something else, it wouldn't be unusual for you to be developing some sort of auto-immune disease.

limbo land is like the twilight zone hahaha
thank you for reading!!

((Sigh!)) Yes.

[JourneyGuy]

You're welcome. This site helped me, so much, too, when my symptoms were new and I didn't have a diagnosis yet.



Good. Hopefully, the MRI will give your neuro some useful information. But, my neuro initially said, "Lots of things can mimic a stroke." Later, he said, "Lots of things can mimic MS." And, so it goes with many neurological illnesses. Their symptoms mimic each other; that's part of what makes diagnosis long and difficult.




I don't know, honestly. That's so difficult for me to answer because MS can present very differently in different people.



One thing to think about, although I don't think this thought will get you any closer to knowing what you have. But, it is possible that transverse myelitis, like MS, is an auto-immune disease. It tends to be a pattern, that if family members have an auto-immune disease, it puts you at higher risk of also developing one.
And, if you already have one auto-immune disease, it puts you at higher risk of developing another one.
In my family, there are 3 of us siblings. I have MS. My brother has Type I diabetes and a thyroid condition. My sister also has Type I diabetes and something thyroid. Her daughter has something thyroid and her son has Type I diabetes. My daughter has severe eczema. My son and my brother's daughter have not, yet, developed any auto-immune diseases.
So, between the 8 of us (us 3 siblings and our 5 children), there are 8 auto-immune diseases.

I tell you this because, whether what you have is MS, transverse myelitis, or something else, it wouldn't be unusual for you to be developing some sort of auto-immune disease.



((Sigh!)) Yes.

Thank you for your reply!!
i think im gonna take more test and wait for the mri and just relax
everything you have told me is very helpful thanks!!!

[JerryD]

Hi JourneyGuy,
It sure looks like you have something going on. I wouldn't put too much faith in Dr. Google but there is a lot of great information on the internet. You should do everything you can do to track all of your symptoms and any changes to your health. You can look up the criteria that neurologists use to make an MS diagnosis. Make sure your doctors test you for low vitamin D and low vitamin B-12. Good luck !

[JourneyGuy]

Hi JourneyGuy,
It sure looks like you have something going on. I wouldn't put too much faith in Dr. Google but there is a lot of great information on the internet. You should do everything you can do to track all of your symptoms and any changes to your health. You can look up the criteria that neurologists use to make an MS diagnosis. Make sure your doctors test you for low vitamin D and low vitamin B-12. Good luck !

Thank you jerry!!

[JourneyGuy]

Thank you so much for your input, time and messages.
to be honest im gonna wait for the blood / MRI results and see what happens.

but i wanted to know according to your experiences...
if my symptoms could fit the MS criteria.

thanks!!

[Mamabug]

Even if you find out that it's not MS, you're welcome here. Here's a forum for other disorders. We often share similar symptoms and similar emotions, so you'll likely still find understanding here.

http://www.msworld.org/forum/forumdi...ther-Disorders

[JourneyGuy]

Even if you find out that it's not MS, you're welcome here. Here's a forum for other disorders. We often share similar symptoms and similar emotions, so you'll likely still find understanding here.

http://www.msworld.org/forum/forumdi...ther-Disorders

Thank you mamabug!