Hi,
Glad to join this wonderful community. Here is my story, in short. I am in my 30s.
6 months ago I got a suspicion of retrobulbar ON in OS (RAPD, superior nasal scotoma, mild pain). I went on steroids for 5 days. By day 6 the visual deficit gradually and totally gone.
- Brain MRI + Gd in the acute phase: no ON enhancement, normal optic nerves, slight enhancement of the optic nerve sheath (unknown etiology). Several periventricular, supratentorial lesions, none active.
- Spine MRI + Gd - fine
- VEP at 11 weeks: N75 normal, P100 latency normal (106ms OS, 107ms OD, normal range at my lab <120ms) as well as amplitude (9.18uV OS, 13.21uV OD)
- NO LP yet
- MTHFR mutation, EPV chronic infection.
- RNFL at 24w - fine, within normal limits.oi
I have been told by my neuro that MRI in acute phase +VEP at <3months have a 90-100% specificity for ON.
Now, I am in limbo and I feel like I am going crazy with all of this. Was that indeed ON at OS? Atypical scotoma, steroid responsive and rapid full recovery, MRI fine for ON, VEP and OCT normal...
Thanks!
Glad to join this wonderful community. Here is my story, in short. I am in my 30s.
6 months ago I got a suspicion of retrobulbar ON in OS (RAPD, superior nasal scotoma, mild pain). I went on steroids for 5 days. By day 6 the visual deficit gradually and totally gone.
- Brain MRI + Gd in the acute phase: no ON enhancement, normal optic nerves, slight enhancement of the optic nerve sheath (unknown etiology). Several periventricular, supratentorial lesions, none active.
- Spine MRI + Gd - fine
- VEP at 11 weeks: N75 normal, P100 latency normal (106ms OS, 107ms OD, normal range at my lab <120ms) as well as amplitude (9.18uV OS, 13.21uV OD)
- NO LP yet
- MTHFR mutation, EPV chronic infection.
- RNFL at 24w - fine, within normal limits.oi
I have been told by my neuro that MRI in acute phase +VEP at <3months have a 90-100% specificity for ON.
Now, I am in limbo and I feel like I am going crazy with all of this. Was that indeed ON at OS? Atypical scotoma, steroid responsive and rapid full recovery, MRI fine for ON, VEP and OCT normal...
Thanks!