Hello all.
Its been a couple of years, again. Seems to be a pattern. lol To make a LONG story shorter...I will post the links to my 2 posts from 2 yrs ago:
http://www.msworld.org/forum/showthr...at-would-hurt)
http://www.msworld.org/forum/showthr...gain-last-week
Well...In the time since I was last here, I am now divorced 1 1/2 yrs and happier in THAT sense at least! lol It was an emotionally/verbally hurtful marriage that then became loveless and the ex was NEVER caring or supportive of my health issues...heck he'd roll his eyes if I winced in pain even. But anyways...I am now living with my boyfriend, Gary, who was also actually my first real love and the boy next door growing up! Literally! lol We found each other again on fb, he had never married and well, the rest is our real-life fairy-tale story! lol Gary is the opposite of my ex and is amazingly caring, supportive and loving-which is such a refreshing and wonderful change!
OK...so, I have been having terrible neck/upper back/arm pain/numbness/burning-right sided mostly but also numbness on, left. It was thought I had neck/spinal issues so was sent to a neurosurgeon, who ordered a new c-spine MRI. Went back to him yesterday for results figuring I was facing neck surgery and would happily do so because I had convinced myself it must be neck/spinal issues and NOT MS after all, causing my current issues! BUT, boy was I blindsided when the doc popped in my MRI cd and looked and said he sees NOTHING from a surgical point of view, but that he does see signal changes...to which I said, "Wait, you mean lesions?!" He looked surprised and I said, "They already found tiny white matter lesions in my brain MRI several years back." He said, "Yes, there are lesions on your spine. You need to go see an Neuro/MS Specialist for this. You probably have MS."
I was shocked, to say the least!!
Soooo...they gave me the name/number/info of the MS Specialist at an MS Center and I have to call Mon morn and make an appointment.
After all these years...now lesions are in my c-spine and may really be facing a DX of MS now.
This time I am very scared. Been crying on and off when it keeps hitting me again.
I'm use to dealing with so much, what with my Lupus, Fibro, OA, etc...etc...etc...but this is really frightening because I KNOW what MS can do/cause as I know a couple of people who have MS. One being an old childhood friend, who I spoke with today who told me she too, has lesions on both brain and spine and now has Aggressive/Progressive MS and gets infusions 2xs a mth now 2 1/2 hrs each. My heart broke for her and made me fear for me all the more.
I still have the issues I had 2+ yrs ago, but just kept thinking it must be Lupus/Fibro/etc and then the neck/spine issues...but I guess not.
So, just filling in the blanks of these past cpl years and current issues and will know more soon, I guess.
Thank for 'listening'
Cathy
Its been a couple of years, again. Seems to be a pattern. lol To make a LONG story shorter...I will post the links to my 2 posts from 2 yrs ago:
http://www.msworld.org/forum/showthr...at-would-hurt)
http://www.msworld.org/forum/showthr...gain-last-week
Well...In the time since I was last here, I am now divorced 1 1/2 yrs and happier in THAT sense at least! lol It was an emotionally/verbally hurtful marriage that then became loveless and the ex was NEVER caring or supportive of my health issues...heck he'd roll his eyes if I winced in pain even. But anyways...I am now living with my boyfriend, Gary, who was also actually my first real love and the boy next door growing up! Literally! lol We found each other again on fb, he had never married and well, the rest is our real-life fairy-tale story! lol Gary is the opposite of my ex and is amazingly caring, supportive and loving-which is such a refreshing and wonderful change!
OK...so, I have been having terrible neck/upper back/arm pain/numbness/burning-right sided mostly but also numbness on, left. It was thought I had neck/spinal issues so was sent to a neurosurgeon, who ordered a new c-spine MRI. Went back to him yesterday for results figuring I was facing neck surgery and would happily do so because I had convinced myself it must be neck/spinal issues and NOT MS after all, causing my current issues! BUT, boy was I blindsided when the doc popped in my MRI cd and looked and said he sees NOTHING from a surgical point of view, but that he does see signal changes...to which I said, "Wait, you mean lesions?!" He looked surprised and I said, "They already found tiny white matter lesions in my brain MRI several years back." He said, "Yes, there are lesions on your spine. You need to go see an Neuro/MS Specialist for this. You probably have MS."
I was shocked, to say the least!!
Soooo...they gave me the name/number/info of the MS Specialist at an MS Center and I have to call Mon morn and make an appointment.
After all these years...now lesions are in my c-spine and may really be facing a DX of MS now.
This time I am very scared. Been crying on and off when it keeps hitting me again.
I'm use to dealing with so much, what with my Lupus, Fibro, OA, etc...etc...etc...but this is really frightening because I KNOW what MS can do/cause as I know a couple of people who have MS. One being an old childhood friend, who I spoke with today who told me she too, has lesions on both brain and spine and now has Aggressive/Progressive MS and gets infusions 2xs a mth now 2 1/2 hrs each. My heart broke for her and made me fear for me all the more.
I still have the issues I had 2+ yrs ago, but just kept thinking it must be Lupus/Fibro/etc and then the neck/spine issues...but I guess not.
So, just filling in the blanks of these past cpl years and current issues and will know more soon, I guess.
Thank for 'listening'
Cathy
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